Living with Neuropathy - Welcome to the group

Thanks so much! How sweet of you to take the time! I appreciate your kind words. Blessings, Sunnyflower

@sunnyflower
Yes very much so. She kept insisting she was right & I was wrong. She didn’t appreciate telling me I was right. She made me mad when she told me the pharmacy sent the medicine they would catch any errors. Yeah right.
I should have filed a complaint against her, for all the good it would have do.
Jake

@jakedduck1 Hi Jake. So sorry to know the danger zone you're in with your Status seizures. I sure hope you get that roommate from New Jersey. It would be such a relief for you to have someone living with you. And he can cook! What a bonus that would be!
My best to you. Laurie

@athenalee I had a medical alert for 5 years when I lived alone. It was a real lifesaver. Now that I live in a seniors' residence, if I press the alert around my neck, 2 staff members come immediately to my apartment and an ambulance is summoned. I've needed an ambulance on many occasions, due to blackouts. Jake, that would be a good answer for you, too. Laurie

That must be terrifying. It’s so great getting to know you here and your great sense of humor

This I guess is a macabre question to the whole group but what if something happens to one of us, how will the rest of us find out or do members just disappear into the ether?

@artist01
@bustrbrwn22
The medical device wouldn’t help me at least not for my Epilepsy. When I have a seizure I have no time to call out. After, when I’m post-ictal I am confused, in fact I don’t know I had a seizure even though my muscles ache and my tongue & cheeks are chewed up. Then I sleep from 8 hrs to 5 days. So by the time I figure out what happened I'm okay.
As far as terrifying is concerned not at all, At least not to me but probably are for people who see me.
Falling off the house, latter's, trees, getting stuck on a fence, that was embarrassing. The fireman rescued me. I'm so grateful for our emergency workers. But they were more terrifying after the fact.
Take care kids,
Jake

@jakedduck1 Gosh Jake, not good that's for sure. You don't have a prodome ahead of time to warn you a bit? I feel so badly for you. When I was having so many blackouts, I always knew it was happening and even though everything was going black, I was conditioned to press my Alert before I completely passed out.
For me, the Alert really works.
Where I live, here at the seniors' rez, we all have one. The main alarm is always going off on the main floor to summon the staff to the aid of the stricken person who has just pressed their Alert for help, and all H--- breaks out as 2 or 3 staff run pellmell for the elevators to get to the person. They even know from the Alert device which of our four floors the alarm originated from. I sure wish something like that could work for you, Brave One. X0

@artist01
When I was on an Epilepsy forum in England. one girls sister notified us when anything serious happened to her. She had very severe status seizures. Members also had occassional meetings and got aquanted with the members & some family members and they notified us. One man who died of Status seizures asked his son to call me if anything happened to him. We were very close.
His grandson used to call me and would always say “will you tell me about my grandpa” It tore me up but I did my best to tell him what what I knew.
I have mentioned In the Seizure thread that a 17-year-old girl died from S.U.D.E.P. ( Sudden Unexpected Death in Epilepsy) her Mom contacted me. We always seemed to find out.
Perhaps people could give a trusted friend or family member Colleen’s contact info and ask that they contact her. In the English forum I requested a memorial section and I wrote a memorial tribute to my friend.
You said you lived another 40 years (so far) So if I live another 40 years I’ll be 108 years old and I am expecting you at my birthday party. You’re only going to be 125 then. Granted it won’t be the most lively party you’ve ever been to
Take care all,
Jake

@bustrbrwn22
Oops, I got you and Laurie mixed up, sorry about that
Jake