Anyone have chronic lymphocytic leukemia (CLL)?

Posted by hikerny @hikerny, Apr 1, 2025

Any individuals with a CLL diagnosis?
Cliff

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minnesotajim | @minnesotajim | 1 day ago

In reply to @gliderguy "@minnesotajim Thanks - yeah - I tried to get into Mayo in Scottsdale but they weren't..." + (show)

@gliderguy Call the Hematology Department directly. If Scottsdale is at all like Rochester, they will get you into a CLL expert.

ppolockaz | @ppolockaz | 1 day ago

In reply to @gliderguy "@minnesotajim Thanks - yeah - I tried to get into Mayo in Scottsdale but they weren't..." + (show)

@gliderguy when I was first diagnosed I tried to get into see an Onco at Banner in Phoenix and they told me 6 MONTHS!!! I looked up my drs online w Blue Cross and found a great onco at Ironwood Cancer Center, 1 week…..don’t take that crap!!!!

gliderguy | @gliderguy | 1 day ago

In reply to @ppolockaz "@gliderguy when I was first diagnosed I tried to get into see an Onco at Banner..." + (show)

@ppolockaz that's where I go - Ironwood. My wife happens to volunteer there - so we were able to get in quickly. I don't think my nerves would have lasted 6 months.

ppolockaz | @ppolockaz | 13 hours ago

My Onco there ordered every test to determine where my CLL was at and I am satisfied w them. They respond when I leave messages within 24 hrs and usually the same day

barbeeh51 | @barbeeh51 | 1 hour ago

Hello
My spouse was recently diagnosed with MDS. When I looked at his after office visit summary, it said MDS/CLLM. So now I am researching CLL I saw on the CLl society website that 3 tests are given --FISH, TP53 and IgVH. Should my husband ask to have these tests done?
The doctor is taking a wait and see approach. My husband is 80.

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