Hi @barbeeh51 Truly, I know what it’s like having a diagnosis where you’re starting from scratch with the information! I had my own story 7 years ago with a highly aggressive form of leukemia. Odds were not in my favor but I’ve never been one for statistics. LOL. Anyway, I’m now 72, alive, kickin’ and healthy. I’m here to offer support, encouragement and support with the information and knowledge I’ve gleaned along my journey.
I gave my doctors a run for their money. 😅 But, I also learned from them by asking questions. I had so many specialists from oncology/hematology to bone marrow transplantation and beyond! Each and every one of them encouraged questions. There is no need to be timid around doctors! Just be direct and matter of fact!

It can be very helpful when time is short in the appointments, to have your questions written down in a little notepad or on your phone. I know how easy it is to get sidetracked with questions and answers. So those little notes can help keep the train on the track. Also handy to have the notepad to make notes during the appointment!

With followup blood testing monthly, that tells me your husband’s doctors aren’t anticipating dramatic changes in his numbers. Monthly is close enough to be monitored for any changes and to then plot trends in test results. Doctors will look for trending numbers either going up or down depending.

So for now, I’d say just enjoy the lovely summer. Encourage your husband to take some walks and try to keep his life activities normal. I know fatigue is his buddy right now and that can be challenging for an active person. But encourage him to listen to his body. If it says NAP, then nap it is! ☺️
Please let how his next appointment turns out, ok?