Hi @barbeeh51 Guess we got our wires crossed. 😉 I didn't, at all, sense that you were debating your husband's diagnosis was questionable. But what I hadn't caught was that your husband's doctor didn't mention the CLL along with the discussion of MDS (myelodyplastic syndromes). So I'm sure that came as a surprise to you both to see CLL on his medical information. I agree, the CLL probably should have at least been mentioned in the conversation with the doctor.

Though the CLL may not warrant further testing at this time. CLL tends to be a very slowly developing type of leukemia which often doesn't require treatment for years if caught in the early stage. You mentioned your husband is 80 and many people newly diagnosed with CLL can go 10 years or so without treatment. So the doctor may not have discussed it as a primary concern because the MDS is a higher priority. I guess what I'm trying to say is that the tests you're referring to would further confirm the CLL diagnosis along with the MDS. But because the doctor is already aware of this, it most likely wouldn't change the 'wait and see' surveillance mode. Your husband's followup blood work would keep the doctor apprised of both conditions.

I know this is a concern to you and your husband and understandable you'd like clarification. You can certainly call his oncologist's office to speak with the doctor or NP/PA to have your questions answered. I think that would go a long way for your peace of mind. Does your husband have any upcoming appointments where you both can discuss this with his doctor?