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Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3, 2024

Has anyone been living with,ET, jac2 mutation

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suedeani | @suedeani | 12 hours ago

I have the same thing and have been on Besremi injections every other week for the last year. As my blood improved we have been able to taper down the dose and I’m now down to 100mgms. At this low dose I hardly have any side effects. Hope it works well for you.

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hanya | @hanya | 7 hours ago
In reply to @sckf "@alikay Thank you for your reply. I have been off the HU for about 6 weeks..." + (show)
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@alikay Thank you for your reply. I have been off the HU for about 6 weeks now, and my count is nearly 900. But I am very afraid of the interferon's side-effects. I had no problems with the HU, other than I now have this ulcer on my ankle that is very slow healing, Guess I will try to get another doctor's opinion.

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@sckf
Hello ! Speak WITH YOUR DOCTORS ABOUT A DRUG CALLED JAKAFI !
“JAKAFI “ I took for two years ! I liked . I had PV
THEN MF !

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