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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (594)Comment receiving replies
@sckf
Hello ! Speak WITH YOUR DOCTORS ABOUT A DRUG CALLED JAKAFI !
“JAKAFI “ I took for two years ! I liked . I had PV
THEN MF !
Replies to "@sckf Hello ! Speak WITH YOUR DOCTORS ABOUT A DRUG CALLED JAKAFI ! “JAKAFI “ I..."
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@hanya
I have been put on jakafi for 18 days for AML with mylofibrosis in my bone marrow and enlarged spleen. I have low red cells 8.5 and platelets now at 9. I am afraid the jacksfi Will not work and lower my count even lower. White cells seem to be ok. I have to do transfusions blood and platelets every week. I hope that ends soon.