Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Lisa Lucier, Moderator | @lisalucier | 18 hours ago

In reply to @pmm1949 "Hi, I'm a 77 year old woman who was diagnosed with Parkinson's in 2023. PMM 1949" + (show)

@pmm1949 - welcome to Mayo Clinic Connect. How have you been doing since your diagnosis?

Lisa Lucier, Moderator | @lisalucier | 18 hours ago

In reply to @goatgirl28 "I was diagnosed 2.5 yrs ago and am ready to 'hear' what I have to look..." + (show)

@goatgirl28 - hoping that members here, such as @meg17 @hopeful33250 @boatman12 and others, will share any material they have read that might show you what to expect with your Parkinson's disease.

Teresa, Volunteer Mentor | @hopeful33250 | 9 hours ago

In reply to @goatgirl28 "I was diagnosed 2.5 yrs ago and am ready to 'hear' what I have to look..." + (show)

Hello @goatgirl28

I would suggest that you visit the Davis Phinney Foundation website. They have excellent videos featuring PD patients, as well as webinars with movement disorder specialists. You can learn a lot from this website.

It, of course, is impossible to know what you have to look forward to when it comes to Parkinson's. We are all so different in the way our bodies respond to this disorder. There are important lifestyle changes you can make that can help with Parkinson's, including eating a healthy diet and exercising regularly. Tai Chi has been proven to be very helpful for PD patients. Tai Chi exercise videos are available on YouTube for free.

Here is a book that might be helpful for you:
How to Reduce Symptoms Through Exercise, by Kristine Meldrum (Author), Bastiaan R. Bloem (Foreword), & 2 more.

What are your most troublesome symptoms now?

goatgirl28 | @goatgirl28 | 1 hour ago

In reply to @hopeful33250 "Hello @goatgirl28 I would suggest that you visit the Davis Phinney Foundation website. They have excellent..." + (show)

@hopeful33250 Thank you for your recommendations. I am challenged most by tremors and abdominal clenching. It is tough o exercise when I am curled up on the floor.