Living with Neuropathy - Welcome to the group

Eeeeouch! I am so very sorry you went through that!! Has it resolved? Did they /it work or help? My spine doc only trusts one anesthesiologist to touch me. I really liked him and knew he knew what he was doing. My spine doc has been around for over 30 years. I am really blessed to have these two delivering care to me and wish the same for everyone.!
Warmest regards, Sunnyflower 😊

@chrs6

Here on Mayo Connect, talking is done via text. As the old ad said, "let your fingers do the walking" (through the yellow pages). If you locate the group list, you can learn a lot from people in the Neuropathy group. You could start by reading through messages in this discussion.

Can you tell us more about your neuropathy - when it started, how it was diagnosed, your symptoms, medications you're taking, treatments you've tried, and what specific questions you have. We aren't medical professionals, but there is a lot of information here that might be helpful for you, written by fellow neuropathy fighters. We'll be happy to share our experiences with the different types of neuropathy.

Welcome to the group. You'll find many caring people here.

I have idiopathic small fiber polyneuropathy, and along with a number of others, I've posted my neuropathy story in a discussion labeled "member neuropathy journeys". Those stories could answer many of your questions.

Stick with us. We're here to offer support to fellow sufferers.

Jim

@sunnyflower

Like you, memory can be my worst handicap when I try to start a message with everyone's Mayo handle. I could probably help myself by writing down the names I want respond to, saving me a lot of scrolling up and down to get the names right.

Jim

Hi Betty and avmcellar and rwinney, Betty, I am so freaked out and sorry for what happened to you with your nerve injection! I was sedated with what they call Conscious Sedation although I really wasn't very conscious because it didn't hurt at all. But I noticed one of the medications was one that immobilizes or paralyzes so that to me would be the answer to people jumping during the procedure when the needle hits a nerve thus potentially causing serious complications such as you have endured. I think they used a benzodiazepine like Valium and propofol which is the paralytic and a couple of others. That's why they should be done with anesthesiologist who specializes in spine injections, who can administer these medications. There are so many different areas they can inject. Different types of injections for problems in different parts of the spine. I forget the names to them but one is called a facet injection. I believe all of them are done under fluoroscopy so they can see exactly where their needle is going. My last injection last Wednesday, they took two pictures of the two injections and gave me a copy of both which I thought was really neat.

I hope what I'm saying goes public on the blog. Logic tells me patience will have a much less risk of problems and complications and a higher risk of Success full outcomes.

Wishing you all a lot of Victory today in your circumstances and peace for your souls. Many, many blessings and warmest regards, Sunny flower. 😊

@chrs6 What’s up? Is it something you can share through this forum? We’re all here for you

Hi everyone,
Here are a few tips on managing replies, emails and setting your notification preferences.

Replies and @mentions
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- Replies and @mentions: How do I know who is replying to whom? https://connect.mayoclinic.org/page/about-connect/newsfeed-post/replies-and-mentions-how-do-i-know-who-is-replying-to-whom/

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I would like to know what herbal remedy helps with your neuropathy pain in your feet. Can you send me a private message? Thanks.

@cwallen9 I think I responded via private message. Foot neuropathy is no joke.

Thx Jim, that has already been suggested. Since my little condo is filled w/ post-it notes I've written to myself and I have so many small spiral notebooks filled w/ resource info, I was only hoping there was a better easier way. If that is what I have to do then I will. I appreciate your input as always! Hope you are much better than tolerable today!! Sunnyflower

For all of those with severe neuropathy pain in the feet and ankles, I urge you to talk with your doc/pain management about the possibility of getting a peripheral nerve stimulator. Take a look at SPR Peripheral Nerve Stimulator (SPRINT) and Bioness StimRouter. SPR is A 60-day treatment; StimRouter is a permanent implant.