LPR, (Silent Reflux) Hiatal Hernia, BE, MAC Infection

Posted by blm1007blm1007 @blm1007blm1007, 5 days ago

Anyone out there with all l have listed to deal with?
I have not been diagnosed with LPR or specifically Acid Reflux (tested for this, no findings) but now truly believe I do have the symptoms of LPR/Silent Reflux.
The LPR possible symptoms are worse at night. Burning sensation in the mouth/tongue.
Has anyone been diagnosed with LPR/Hiatal Hernia along with BE and MAC?
If so, how much clearing of phlegm/mucus are you having to do during the day ....and .....upon those wake up times between the short hours of sleep.... from one wake up period to another.....and once one is able to fall back to sleep.
I wake up to walk down the hall to do as my bladder has asked me to do and then I have to clear my trachea/throat/or esophagus of what is annoying me and keeping me from easily going back to sleep.
Any similar stories?
Barbara

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Profile picture for ccdb @ccdb

Barbra,

I'm so sorry you are having these multiple issues that you are dealing with. I have GERD ( and a hernia), NTM, COPD & Bronchiectasis, and 3 other autoimmune issues, and most recently diagnosed with Cardiomyopathy. I have always been a left side sleeper, but was finding it more difficult with my multiple lung issues, causing coughing and needing to clear my lungs of mucus. My husband and I made the expensive decision to purchase an adjustable electric King-size mattress. A friend who has an adjustable electric split King-size strongly advised me not to get the split mattress because changing the sheets is so difficult. Unfortunately, my husband does not like sleeping sitting almost straight up, so he slides down with his feet hanging off the bed. I now sleep almost straight up with a pillow I purchased from Amazon that fits my neck nicely. I am now a back sleeper, but I seldom have coughing issues at night, or the burning chest issues from the GERD, and NO sliding down during sleep. I found that, even when stacking pillows, I would still slide down while sleeping. I've read it is not good for anyone to sleep flat on their backs. I try to never eat, at least, 3 hours before bedtime, which also helps with the GERD and/or silent reflux.

I realize buying an adjustable electric mattress is not a realistic, feasible, or affordable option, but it has made a huge difference in my life and sleeping. As a person who has fought insomnia for decades, I knew I had to do something drastic to get some much needed rest.

I wish you the best of luck in finding a solution to your issues.

Take care, stay safe, and good luck.

Cathie

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@ccdb May I know what you bought from Amazon. I'm in the same issue, finding what might be the best pillow although I piled up 3 pillows.

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Profile picture for formergardener @formergardener

@rmoore901 Try placing one or two pillows vertically on your wedge pillow, depending on how elevated you would like your torso to be. One should be enough. You will not slide down.

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@formergardener please explain that in detail? I slide down every night!

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Profile picture for sweethighland @sweethighland

@ccdb May I know what you bought from Amazon. I'm in the same issue, finding what might be the best pillow although I piled up 3 pillows.

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@sweethighland I've had my pillow for at least 2 or 3 years, and I've checked my order history, but can't find it. Amazon may not sell it anymore, but I'm sending two links that are similar to the one I bought. The one I have can be washed. I actually washed it again last week without any issues. It does take a while to dry in the dryer, but I want to keep it clean, so I put two pillowcases on it every week when I change our bed sheets.
https://www.belk.com/p/serta-comfort-curve-refresh-foam-pillow/0438745301036.html!!!!x!!!&campaignengineid=GG_23461354948&adengineid=&adgroupengineid=&ogmap=SEM|PLA|GOOG|PLA|c|TOP|||||23461354948|&gclsrc=aw.ds&gad_source=1&gad_campaignid=23456820884&gbraid=0AAAAADi6qOKzh8uI9oKXlHrAGxOtmUvGb&gclid=Cj0KCQjw2_TQBhCnARIsAF3-XhyFkOYBt7OSY-Y6MlrnbjtyFp7f1IL3fBi2RWObWtmwcLBfyrXLDJ4aArsfEALw_wcB
I also found this one from Amazon, but it is not exactly what I bought, but similar.
https://www.amazon.com/DreamyBlue-Adjustable-Combination-Alignment-CertiPUR-US/dp/B0DR9W4J8P/ref=sxin_11_pa_sp_search_thematic_sspa
What has helped the most is the electric adjustable mattress for our bed, which is pricey. I bought the pillow first, but not for sliding down. My neck was bothering me, and I thought this pillow would help, which it did.

I hope this helps. Sorry, I could not find the exact pillow on Amazon. These two links are close to what I have.

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Profile picture for Beejenigma @beejenigma

@formergardener please explain that in detail? I slide down every night!

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@beejenigma I use down filled pillows with two pillow cases. The first is a hypoallergenic zipper case, and the other is a normal sheet set pillowcase.

I use the down filled because they are more substantial and easy to squeeze and shape when needed. I just put the pillow vertically on the wedge as it slants downward. When I lie down, I make sure that my head is high up on the pillow, and the base end of the pillow is at my low back or below my hips. I like to tuck the upper part of the pillow under my neck, too. Sometimes, I double up and use two pillows on the wedge. It works for me. It took some getting used to. I also feel that it helps my sinuses.

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Profile picture for formergardener @formergardener

@beejenigma I use down filled pillows with two pillow cases. The first is a hypoallergenic zipper case, and the other is a normal sheet set pillowcase.

I use the down filled because they are more substantial and easy to squeeze and shape when needed. I just put the pillow vertically on the wedge as it slants downward. When I lie down, I make sure that my head is high up on the pillow, and the base end of the pillow is at my low back or below my hips. I like to tuck the upper part of the pillow under my neck, too. Sometimes, I double up and use two pillows on the wedge. It works for me. It took some getting used to. I also feel that it helps my sinuses.

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@formergardener I use a sealed pillowcase on a feather pillow so I can do that same thing. I put a sealed pillowcase on an old fiber filled at the base of the wedge and then the feather pillow for my neck and head. I still seem to slide down a bit, but it is better than just the wedge.

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Profile picture for ccdb @ccdb

@sweethighland I've had my pillow for at least 2 or 3 years, and I've checked my order history, but can't find it. Amazon may not sell it anymore, but I'm sending two links that are similar to the one I bought. The one I have can be washed. I actually washed it again last week without any issues. It does take a while to dry in the dryer, but I want to keep it clean, so I put two pillowcases on it every week when I change our bed sheets.
https://www.belk.com/p/serta-comfort-curve-refresh-foam-pillow/0438745301036.html!!!!x!!!&campaignengineid=GG_23461354948&adengineid=&adgroupengineid=&ogmap=SEM|PLA|GOOG|PLA|c|TOP|||||23461354948|&gclsrc=aw.ds&gad_source=1&gad_campaignid=23456820884&gbraid=0AAAAADi6qOKzh8uI9oKXlHrAGxOtmUvGb&gclid=Cj0KCQjw2_TQBhCnARIsAF3-XhyFkOYBt7OSY-Y6MlrnbjtyFp7f1IL3fBi2RWObWtmwcLBfyrXLDJ4aArsfEALw_wcB
I also found this one from Amazon, but it is not exactly what I bought, but similar.
https://www.amazon.com/DreamyBlue-Adjustable-Combination-Alignment-CertiPUR-US/dp/B0DR9W4J8P/ref=sxin_11_pa_sp_search_thematic_sspa
What has helped the most is the electric adjustable mattress for our bed, which is pricey. I bought the pillow first, but not for sliding down. My neck was bothering me, and I thought this pillow would help, which it did.

I hope this helps. Sorry, I could not find the exact pillow on Amazon. These two links are close to what I have.

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@ccdb Thank you very much. I will try and look for the pillows you mentioned. Are you cured from GERD?

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