Johns Hopkins Long COVID survey

Posted by diverdown1 @diverdown1, 6 days ago

A member of our group on here shared this with me. I think it is important to give people doing research as many and as much information as possible. It takes about 20 minutes. Here is the link.
https://covid-long.com/

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I was given the link from another of us on here @klf58 and I also greatly appreciated the opportunity to take it. You are so welcome. I, like you, believe that the more we can provide what our symptoms and experiences have been, the better we may be and/or the next generation as I know that a lot of children have this as well. I woke up this morning feeling as if my head was about 6 inches thick all over. I am doing my graduate internship, which as you can imagine is touch and go, day by day. My thoughts always go to "how am I going to support myself, when I feel so bad." I admire your strength and all the others on here and around the world that have this. It is so difficult, not just physically but the emotional toll is as well. My hope is that Johns Hopkins will continue to reach out to us. It seemed like they wanted to get an email. That you for the message Donnie, @donnie46
Ginny

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I took the survey and then at the end. my answer to contact me changed from yes to no. Did not make sure button stayed yes. I can be contacted.
Gail Seay

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@gnana6 I suggest maybe contact them and let them know that you want to be contacted.

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Good morning or day, wherever you are. Yes, I shared the Hopkins LC study link, as I hope research will make a difference, if not to us, then to others. I am in the midst of a cross country move for a new job and exhausted from packing and long days of travel, all of which I previously would have done with ease, but now just causes more fatigue. I already live with chronic pain, but it was easier before covid. I know we are all doing the best we can. I just wish there were help for us now. After six years, I don't feel hopeful anymore. LC has really made my mental health issues worse. It's all so hard. Hang in there, everyone. It helps to have this space to remember we are not alone in our suffering. That in itself is a gift, so thank you all for sharing, encouraging, and posting.

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I’ve had head pressure for 3 years. Feels also like a band around my head. Is there sang hope for it

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