Johns Hopkins Long COVID survey

Thank you

I can’t connect or find a link thru a google search. Is this still active?

Thank you!

@jb729 Yes it is. I did the survey yesterday. The site is SLOW though.

Thanks - the link worked...very interesting study!

I took the survey and then at the end. my answer to contact me changed from yes to no. Did not make sure button stayed yes. I can be contacted.
Gail Seay

@jb729 clicking on the link worked for me.

Started this 5/28/2026 in the evening. Altho I saw the 'working' symbol after waiting 1/2 hour nothing came back so I exited out.

Apologies. Yes, the site is slow and it took several minutes for it to come up when I got on the site. I just kind of sat and waited. You may be able to refresh the page or leave and try again. I know it is still active. I just want as many of us as possible to fill it out. I believe this is advocacy in a way. Grateful for all of you!

@diverdown1
I successfully submitted the survey. It was slow for me, too. I switched browsers from Brave to Chrome and it worked better. (It took me longer than 20 minutes to check all the boxes 😛, but I finally got 'er done.)

Dear diverdown1
Your providing the J.Hopkins survey is invaluable to those of us who have Long Covid. I took the survey and was VERY pleased it provided space for comments at the end. Since my very rare blood cancer is little known AND has some identical symptoms to Long Covid (both diagnosed in 2020), I appreciated being able to add input. I firmly believe that it is up to Long Haulers to provide information that future doctors will learn in their medical school training so eventually patients will not be facing physicians who know little or nothing about this debilitating disease. You have provided a service beyond compare. I've waited seven years for such a survey, and YOU offered it. Know that MANY of us on this site appreciate your sharing this. It goes farrrr beyond "like, helpful and hug!" With deep appreciation, Donnie 46