Has anyone had to deal with a functional neurological disorder?

I hope Cognitive behavioral therapy helps. I'm going crazy with all these things happening to. Burning mouth syndrome, Red ear syndrome, hyperventilating syndrome. No doctors could give me answers. Finally my psychiatrist mentioned Functional Neurological disorder

I'm sure there are Neurofeedback centers across the country. I checked my area in southern Indiana, across from Louisville KY and there's one (Kentucky Neurofeedback & Counseling 3400 Stony Spring Circle Louisville, KY 40220) that apparently accepts medical insurance.

@galere
I would read the work of Howard Schubiner, He has a new second edition of his book Unlearn your Pain Coming out tomorrow and they use different kind of therapy these types of disorders. He also has a lot on YouTube. I can’t hard to try these things because they’re the people who are doing the most research on chronic pain, especially the type that has no no specific diagnosis at times

@whs2026 ( Bad arthritis.keyboard difficult. short sentences Sorry! Hi- Diagnosed. few mos. Few x-over symptoms w. u. muscle weakness, lots more, but not same as u. Tretmt. plan: Cleve. Clinic,U Miami etc.
team approach:
psychiatrist
neuro
neuro/psych
PT OT SPT
cog - behav
neuro/opthi

told no cure - symptoms wax/wane

need an interpreter my shy-hand? just ask!
Thnx for posting me - very very very but o luc
AMY

@bealillie my 13 year old daughter has only recently been diagnosed with FND and Ireland lacks experience and resources do you know if there are inpatients or facilities to help her please?

Has your daughter recovered please? My daughter is 13 recently diagnosed...very scary for her

The Mayo Clinic does have a location in London, but of course it is private and not covered by the NHS or the European Union healthcare system. Perhaps someone could clarify if FND is another name for what some neurologists call Functional Movement Disorder and others call Functional Psychogenic Disorder. I was diagnosed in November of 2024 and as with FND, there is no cure, although for me 300mg of Gabapentin 3 times a day allows me to have a fairly normal life, but with brief episodes of Uncontrolled leg, arm and body movements, stuttering, and at times a high startle response to unexpected sound, light and movement.

FND patient here.
I was diagnosed with FND about 3 years.
A few years before my diagnosis, I was having trouble walking. I looked like I had just been riding a horse for 2 days.
The double vision was next followed by tremors, and my balance was getting worse.
Increasing fatigue, breathing difficulties, Hypersomnia, weight gain have all added to my daily misadventures.

I have fallen twice in the last 2 months and hit my face both times. Now I have TMJ because of the way I fell.

I’m 76 years old and live alone. Even though I have things in place like grab bars, walkers, and canes, I lose balance if I bend forward I fall backwards, sideways, forwards. Anyway actually.
The biggest problem and fear is getting up off the floor! The struggle is so hard. Both my knees have been replaced and kneeling (if I can) is extremely difficult. The furniture I grab onto slides on the laminate floor.

I wear an Apple Watch with fall detector. It only works when you fall and don’t move at all for a minute. Then it will ask if you are ok.

FND has changed my life forever.

Look up reactive PT
they are specialized in FND