Forteo side effects

I had stopped Fosamax around March,Beg April.
Then I got my blood test mid. (Ctx99,P1np 19) May. It Took nearly 3 more months to get my Forteo approved by insurance. So I started Forteo in August.
I wish I had insisted on getting a baseline before starting Fosamax to see what my Real normal Ctx and P1np were. What a learning journey. I feel so blessed to have found this group.
Best regards

I am also on Forteo, for a second time now. Can I ask what you are taking for continued care after Forteo? I am already worried about that.

broken13 - I'm sorry I took so long to respond. My Endo wants me to do the yearly Reclast injections. I will start in April. Not looking forward to it. It sounds like most get sick for a few days, if not worse. Did you do the full 2 years of Forteo the first time? What did you take in between your 2 rounds of Forteo?

I took Forteo in 2016 for the full two years. Prior to that I had tried Bosophomates but discontinued after only a few weeks when I had a severe reaction. I only went on Forteo after seeking out an endocrinologist on an urgent basis, as I was experiencing a series of spinal compression fractures. Following the two years of Forteo, I did only one shot of Prolia and had osteocrinosis of the jaw and lost two molars which occurred when I was near due for the second shot. For the last 5 years I was taking Raloxifene with no side effects. I am now 67 with -3.5 in my hip, as they can no longer take reading from my spine.
Recommendation was to do Evenity, but that was not approved, so I am now 2 months in with another course of Forteo. Not sure how long I will take it or what I will follow up with at this time. Would love to hear from anyone else doing an extended or second course of Forteo.
All the best to you!

@broken13
I am fright about osteonecrosis because I have dental issues. What happened to you?

@ipg I had severe jaw pain. The dentist insisted there was no crack or cavity. I went to him several times and asked him to just pull the tooth. He said it was a healthy tooth and I must have just 'bruised' it?! My family doctor sent me for a proper bone scan with die and they determined osteonecrosis. I ended up loosing two molars, but because I had just been on Forteo, apparently that helped with my healing.

@broken13
Thank you for your response. I had a dexi in 2024 and overall at 2.9 My endocrin wants to treat. Putting it off. Joined a gym getting a personal trainer. Scared. I feel that I am at risk for MRONJ given that I( have exostosis and tori. Dentist says good oral hygiene is the key. Endocrin wants to place me on Forteo or Tymlos. Scared beyond belief. Told them I will revisit it next year. Will be active in the gym. Want to buy Fortibone. Live alone. What's going to happen to me should I have these side affects? Any advice?

@broken13
Thank you for your response. I had a dexi in 2024 and overall at 2.9 My endocrin wants to treat. Putting it off. Joined a gym getting a personal trainer. Scared. I feel that I am at risk for MRONJ given that I( have exostosis and tori. Dentist says good oral hygiene is the key. Endocrin wants to place me on Forteo or Tymlos. Scared beyond belief. Told them I will revisit it next year. Will be active in the gym. Want to buy Fortibone. Live alone. What's going to happen to me should I have these side affects? Any advice?

If you can get Kieth Mccormick's book "Great Bones" He has a complete chapter on Drugs. Pros, cons , side effects, follow up drugs to prevent bone loss as well as which to avoid if you have certain Health issues. Pg557-560
Evenity :
(Romosozumb) He has 4 pages on it. It sounds good, except scary possible side effects. But he states after the one year treatment you must still use a bisphosphonate to hold gains.
Thank you for sharing . I have started a list of follow up drugs,and question to get answered before I am done with Forteo.
God Bless