Living with Neuropathy - Welcome to the group

Thanks so much Chris for responding. You continue to be a positive role model.

I know very little about medical marijuana but I know that because it is still NOT legal by the Federal government, NIH and others may not do research on the value of it in the treatment of various diseases. I went to a presentation by a highly regarded internist in the Washington, DC metropolitan area and he mentioned that there were a few areas where the use of medical marijuana had shown some promise, one of which was PN. I spoke with him afterward and he thought i would be a good candidate. In my state it is legal and you first need to apply for an identification card (which verifies that you are a resident of state). Once that is in hand you can go to a dispensary to get marijuana in different forms and be guided by those in the dispensary. Or, as I prefer, go to a doctor who has been registered to prescribe medical marijuana. You pay a fee, they do a brief history and physical and guide you on what to take and I believe follow your progress. i am awaiting my id. so am just beginning the process but will be happy to share my experience.

To move forward on research, Federal legalization is necessary. Never thought I would be an advocate but my mind is certainly open to that possibility.

I found a State registered prescribing Dr who qualified me for a medical marijuana license. That cost $250. Then I visited my local dispensery and paid $212 (after 25% discount for new customer) to walk out the door with 2 bottles of oil. 2 weeks later I needed to reorder the THC dominant oil then the following week needed to reorder the CBD dominant oil. Another approx $250 as now the discount is only 15%. Good news is that same day delivery to door is built in to overall cost. As I understand it, my cost should decrease once I find an acceptable dose and can streamline products to be cost-effective. Its a very expensive endeavor but I chose this way in order to eliminate my second guessing and to benefit from an experienced pharmacist.

Hey there, good afternoon @rwinney, How are you feeling today? I had a thought this morning. I think that you analyzed the no cure issue well. So instead of waiting fruitlessly for a pain-free outcome, perhaps it is best to work toward managed pain. We know it is there, we tolerate what we can and medicate and/or treat what we cannot. Be at ease today, Chris

Good afternoon, @rwinney, Just saw this post....isn't this a lot more than the amounts I gave you that I pay? Are you creating your own dosage ratios from the two tinctures? What is the legalization picture in your state? Chris....keeping on, moving on.....

Hello, you mention that you remain on Percocet with cbd/thc. I'm trying to find a proper dosing of CBD dominant and THC dominant oils that take care of my intensely growing and debilitating pain. Although I'm still experimenting and won't give up hope quite yet, my body and track record prove that Im not your average case...as confirmed by the dispensary pharmacist. My fear is over medication. I have not been able to reduce my hydrocodone intake for pain despite adding the medical marijuana or lidocaine infusions or myofascial release or 50,000 supplements or heat or ice or rest or Lyrica or Duloxetine. My neuropathy continues to progress. I continue to be fooled by the thought that this new way of living is temporary, will be fixed or helped with B12 or any of the above mentioned. Mind you it all plays a collective role but not enough, bottom line. I've really tried hard to understate my pain and circumstance in hopes of slowing progression by simply being optimistic. I have rolled with each punch thinking it will stop, it will slow, it will improve...I'm not as bad as I think. I've compared myself to many others which is never a good thing to do because I set myself up for disappointment and frustration when I hear someone could do something I can't like work, drive, walk, exercise, stretch. I feel like the life is slowly getting sucked out of me. I'm becomming housebound and reclusive due to pain and honestly am baffled, dumbfounded, befuddled at my physical being and how my once active, able and willing life has made this turn. I've held it back but I'm saying it now...I'm scared. I was scared 2 years ago, I was scared a year ago and I'm more scared now after feeling what 3 years has done to my body. I will turn 50 in March and honestly will accept that age easily as it is the least of my worries. Thanks for listening.
Rachel

Hello, you mention that you remain on Percocet with cbd/thc. I'm trying to find a proper dosing of CBD dominant and THC dominant oils that take care of my intensely growing and debilitating pain. Although I'm still experimenting and won't give up hope quite yet, my body and track record prove that Im not your average case...as confirmed by the dispensary pharmacist. My fear is over medication. I have not been able to reduce my hydrocodone intake for pain despite adding the medical marijuana or lidocaine infusions or myofascial release or 50,000 supplements or heat or ice or rest or Lyrica or Duloxetine. My neuropathy continues to progress. I continue to be fooled by the thought that this new way of living is temporary, will be fixed or helped with B12 or any of the above mentioned. Mind you it all plays a collective role but not enough, bottom line. I've really tried hard to understate my pain and circumstance in hopes of slowing progression by simply being optimistic. I have rolled with each punch thinking it will stop, it will slow, it will improve...I'm not as bad as I think. I've compared myself to many others which is never a good thing to do because I set myself up for disappointment and frustration when I hear someone could do something I can't like work, drive, walk, exercise, stretch. I feel like the life is slowly getting sucked out of me. I'm becomming housebound and reclusive due to pain and honestly am baffled, dumbfounded, befuddled at my physical being and how my once active, able and willing life has made this turn. I've held it back but I'm saying it now...I'm scared. I was scared 2 years ago, I was scared a year ago and I'm more scared now after feeling what 3 years has done to my body. I will turn 50 in March and honestly will accept that age easily as it is the least of my worries. Thanks for listening.
Rachel

Hello, you mention that you remain on Percocet with cbd/thc. I'm trying to find a proper dosing of CBD dominant and THC dominant oils that take care of my intensely growing and debilitating pain. Although I'm still experimenting and won't give up hope quite yet, my body and track record prove that Im not your average case...as confirmed by the dispensary pharmacist. My fear is over medication. I have not been able to reduce my hydrocodone intake for pain despite adding the medical marijuana or lidocaine infusions or myofascial release or 50,000 supplements or heat or ice or rest or Lyrica or Duloxetine. My neuropathy continues to progress. I continue to be fooled by the thought that this new way of living is temporary, will be fixed or helped with B12 or any of the above mentioned. Mind you it all plays a collective role but not enough, bottom line. I've really tried hard to understate my pain and circumstance in hopes of slowing progression by simply being optimistic. I have rolled with each punch thinking it will stop, it will slow, it will improve...I'm not as bad as I think. I've compared myself to many others which is never a good thing to do because I set myself up for disappointment and frustration when I hear someone could do something I can't like work, drive, walk, exercise, stretch. I feel like the life is slowly getting sucked out of me. I'm becomming housebound and reclusive due to pain and honestly am baffled, dumbfounded, befuddled at my physical being and how my once active, able and willing life has made this turn. I've held it back but I'm saying it now...I'm scared. I was scared 2 years ago, I was scared a year ago and I'm more scared now after feeling what 3 years has done to my body. I will turn 50 in March and honestly will accept that age easily as it is the least of my worries. Thanks for listening.
Rachel

@rwinney Hi Rachel. I understand scared, completely. Chronic pain is like living in some kind of altered state. Chronic pain perplexes me, as I used to heal from things quite easily. I wonder how there is never any healing. I wonder how to live this way. I read how limited you are, and it is heart breaking. I haven't a clue what to even say, except that I hear you and I understand. I feel your vitality, your passion, your drive. I feel your heart. How could we be put on earth to suffer? On a practical note, I ordered conolidine, and it should be at my house in a week or so. I will post to everyone how it works. Just took CBD, and pain is better, but now so sleepy. As you know, I will be trying B12 shots, and shortly after, low dose naltrexone. I will post to everyone about those things, too. Pain is not for sissies. I like so much that we can share...….I am thinking of you.....what else can I say? Lori R.