Living with Neuropathy - Welcome to the group

Yes, mine is on my left side from the waist up,down my left arm and the back of my head and my neck! It never stops

In reply to @resawaller
Good morning
What tests doctors indicate to study and mesure your lateral rute of pain?
Thank you very much for answer.

@contentandwell
Did your doctor ever mention Visceral fat to you and it’s dangers before actually getting Liver disease?
Jake

@jakedduck1 No, Leonard, no doctor really did. I think they knew I was smart enough to realize I was overweight and probably wanted to not risk having me no longer coming to them. I think very few doctors speak to their overweight patients for that reason. I had numerous PCPs before I had cirrhosis, at least 4, and only one very cautiously mentioned weight when she diagnosed me as having diabetes. She was a really good doctor but she left the regular practice to become a hospitalist since that fit better with being a mother of young children. I still miss her.
I knew that being an "apple" put me at greater risk for heart disease but I had no idea of the other things it put me at higher risk of. Frankly, I am not sure it would have made much of a difference. Hindsight is always 20/20.
JK

Hi, my name is Ann and I have an Aunt who has been living with peripheral neuropathy since I was a child. I am now 60 years old and my Aunt is in her late 80's. Recently my cousin (her son) was told that she had reached the maximum medicinal treatment available. He was told by someone to talk to a doctor at some clinic re: Stem Cell Therapy for peripheral neuropathy. I have been searching the Internet and all I can find is some research being done on it but no definitive treatments using Stem Cells. Does the Mayo Clinic have any information on this topic that I can pass on to my cousin. He is not in the healthcare field so he turned to me for help. Thank you very much for your assistance. I truly appreciate it. Ann

Hi Ann @annmarie1, Welcome to Connect. I don't know of any successful stem cell treatment/therapy for any autoimmune disease but there is a good discussion for neuropathy that you might be interested in reading through to see what others have discussed. Normally it's not covered by insurance. Also I don't think there have been any clinical trials or FDA approval for any of these types of treatments so it's good to do a lot of research.

> Groups > Neuropathy > Stem Cell Therapy for Neuropathy
— https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

Here are some articles that may provide some more information.

There is also a post by @colleenyoung our Director that discusses one of the focus areas on neuroregeneration, one of Mayo Clinic's Regenerative Medicine Programs.
-- https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/?pg=1#comment-110326

‘Amazing’ New Stem Cell Treatment for Neuropathy (July 2015)
— https://www.painnewsnetwork.org/stories/2015/7/12/amazing-stem-cell-treatment-for-neuropathy

National Institutes of Health – Mesenchymal stem cells to treat diabetic neuropathy: a long and strenuous way from bench to the clinic
— https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4979500/

Do you know if your aunt has a specific diagnosis for her neuropathy and what type of symptoms she has?

Hi there @helennicola, I am just checking in with you, #1 to see how you are feeling, #2 to see if you are still headed for CA and 3# to take me with you....naw.....just teasing. If you will tell me the city where you will be, I will see if you can get my favorites there or a quality substitute. Are you traveling by air or is this a road trip? May you have relief from pain. Chris

Hi Chris, I am feeling much better lately, thank you for asking; my husband’s back surgery went well and he is now walking without a cane. We are going to LA in November, Mt. Washington area, not far from downtown. We are flying (😞). Hope you are well and enjoying the beautiful cooler weather. Helen

I’ve been living with neuropathy for decades and it’s been getting worse. It can feel maddening and is wearing on me a lot lately. I can’t even keep track of or try to count the many places it hits me in a second or several seconds then it hits me in some other completely different area, almost nonstop all day every day. Occasional bouts where it’s far worse but those are a different thing where it’s an all-over feeling of pressure that’s pain, usually lasting 2-4 days. I never got a clear answer as to why and studies of the spine don’t show why. Sugar has been borderline for years but not diabetic. Glad to find a discussion group.

I had a apt with the neurosurgeon and he said I really need surgery on spine.it will never get better without it, only worse. It’s lower lumbar L4. L5. And spinal stenosis. Has anyone had this type of surgery and it helped the neuropathy??