Living with Neuropathy - Welcome to the group

I'm 27 years old and I've been dealing with SFN for over a year now. Had the biopsy to confirm and tried various antidepressants. Currently I decided to stop taking medication because I don't want to be on anything. I'm so young and don't understand why this has happened as I'm sure many of you feel. I've always been healthy and don't have diabetes or any known cause. It's so frustrating and every day is a battle to be positive. Some days i'm depressed and others I'm mad. At this point i don't know if I should even see anymore doctors because it's the same drill as in they can't do anything or don't know the cause.

For natural remedies what has worked for relief?
Also have your symptoms of SFN gotten worse?

Acupuncture - don't think it's helped at all.
I've been trying drinking celery juice every day, giving that more time.
Eat lots of fruits and veggies through out the day.

Thank you for your support and tips.

Jump to this post

I'm 27 years old and I've been dealing with SFN for over a year now. Had the biopsy to confirm and tried various antidepressants. Currently I decided to stop taking medication because I don't want to be on anything. I'm so young and don't understand why this has happened as I'm sure many of you feel. I've always been healthy and don't have diabetes or any known cause. It's so frustrating and every day is a battle to be positive. Some days i'm depressed and others I'm mad. At this point i don't know if I should even see anymore doctors because it's the same drill as in they can't do anything or don't know the cause.

For natural remedies what has worked for relief?
Also have your symptoms of SFN gotten worse?

Acupuncture - don't think it's helped at all.
I've been trying drinking celery juice every day, giving that more time.
Eat lots of fruits and veggies through out the day.

Thank you for your support and tips.

Jump to this post

Hi @ashley302, I would like to add my welcome to Connect along with @jimhd and other members. Like Jim I also have idiopathic small fiber peripheral neuropathy and have had it for over 20+ years. I only have the numbness with my neuropathy and agree with Jim that it seems to affect each of us a little different and what works for one may not work for others. I take a protocol of vitamins and minerals which seems to have slowed or stopped my neuropathy progression but only time will tell. I shared what has helped me in my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

You are here asking questions and that is great. One of the best things you can do to help yourself is to learn as much as you can about your condition. Knowledge is power and will help you when discussing treatment options with doctors. There are some other discussions on Connect that you might find helpful.

> Groups > Neuropathy > Scientific research and scholarly papers on Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/scientific-research-and-scholarly-papers-on-small-fiber-neuropathy/

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are you able to share a little more about your symptoms? Do you have numbness along with pain? Is it just in your feet?

Jump to this post

Im so sorry for your diagnosis. It truly sucks at any age but, the younger you are, I feel the more unaccepting it can be. I began with SFN symptoms at 46.

Trial and error, a ton of research, along with perseverance will get you through as you adjust to a new normal. Hoping you were detected in early stages that may possibly bring nerve regeneration. My Neuro claims it can take up to a few years, no guarantee.

You have come to a supportive forum which has helped me geatly. Navigate the threads and learn from others experiences, each unique. Take notes then do your own research. Knowledge is power!

Good luck Ashley. We are here to help! Ask any questions, any time. 🤗
Rachel

Jump to this post

Thank you for sharing. Yeah the hardest part I feel like is accepting it.

As far as early stages how can there be nerve regeneration? I understand if you find the root cause then there's a possibility for recovering and correcting the problem.

Is your type of neuropathy idiopathic or did you get any reverse in your symptoms?

Definitely support will be helpful because it's hard to cope with this condition and not having people that can relate to you.

Thanks for much Rachel.

Jump to this post

Thank you for sharing. Yeah the hardest part I feel like is accepting it.

As far as early stages how can there be nerve regeneration? I understand if you find the root cause then there's a possibility for recovering and correcting the problem.

Is your type of neuropathy idiopathic or did you get any reverse in your symptoms?

Definitely support will be helpful because it's hard to cope with this condition and not having people that can relate to you.

Thanks for much Rachel.

Jump to this post

Hi Ashley - I was only diagnosed 2 weeks ago - and only joined this forum a few days ago 🙂 I am honestly heartbroken to hear that you have been diagnosed with this at such a young age. I am in my early 60's and don't fuss about the underlying cause because my Neurologist said it's quite common in older people.

You said you don't want to take any drugs, and that makes me wonder how you deal with the pain. I finally went to my doctor because the pain had started to wake me up in the middle of the night (every night) and I could not get back to sleep until the pain meds I kept on my bedside table kicked in; and that doesn't even mention the daytime pain - which at times is all-consuming. Perhaps you are not there yet?

Jump to this post

Good morning everyone. I want to share my recent experience with a pain relief device called Quell. I first saw it in my local pharmacy but because it is expensive wanted to do some research first. After doing some reading and exploring their website (quellrelief.com) I decided to take the plunge. I have been trying to find pain relief without having to take any prescription drugs and since Quell offers a 60 day money back guarantee thought it was worth a try. It does say on the website that you should wear it for at least 30 days since it can take some time for the pain relief to kick in. At day 12 I noticed that my pain had decreased substantially and at times it has virtually disappeared. When I do feel the familiar burning sensation it is at a manageable level and doesn’t last a long time. A couple of caveats: this is only day four of relief and being able to sleep but I am encouraged enough to mention this device should anyone want to look into it. I can continue to post updates on my experience to see if the effects continue (fingers crossed!)
Also, at the same time I started using the device I began taking PEA and using a full spectrum CBD capsule so who knows what the effects of those may have been. I don’t want to sound like a salesperson for a particular product but wanted to mention it as something that people may want to investigate. Has anyone else tried a Quell device?

Jump to this post

Hi Ashley - I was only diagnosed 2 weeks ago - and only joined this forum a few days ago 🙂 I am honestly heartbroken to hear that you have been diagnosed with this at such a young age. I am in my early 60's and don't fuss about the underlying cause because my Neurologist said it's quite common in older people.

You said you don't want to take any drugs, and that makes me wonder how you deal with the pain. I finally went to my doctor because the pain had started to wake me up in the middle of the night (every night) and I could not get back to sleep until the pain meds I kept on my bedside table kicked in; and that doesn't even mention the daytime pain - which at times is all-consuming. Perhaps you are not there yet?

Jump to this post