Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hi everyone I have nuero pathy and major brain fog. I have a chronic illness it’s lovly gives yo7 tons of symptoms. I had it so bad I was tingling in my face my legs my hands felt the paralyzed the EMT after getting my medical recordsd marked me as a psych patient really nice. I am receiving no help. What helps you with this?
@kansasgal Thank you for the information. I have terrible swelling on the top of my foot. I have had this for over 8 months. I do believe I also have a Mortons neuroma as the underfoot icing helps. The podiatrist wants me to wear an ankle brace and I understand why. The left side of my foot pain me especially when I walk. I can't find an ankle support that doesn't hurt me. Do you know why the to of you foot swells? Now my other foot is paining me. You know I am ready to just walk away. Maybe the leg swelling is lymphedema. I just don't know. I thought I hit on something with the podiatrist, but now know it is all about neuroma. Did you ever get the cortisone shot in your foot?
Hi @kittykiernan, are you able to share a little more about your neuropathy diagnosis and what kind of treatments or medications you are taking for your neuropathy? You are definitely not alone with this terrible condition. I have small fiber peripheral neuropathy that mostly affects my feet to just above my ankles. I've shared my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I mainly have numbness and there are no medications that I no of that help with numbness. Here are a couple of articles I found on brain fog that may be helpful.
Six Common Causes of Brain Fog and How To Combat Them
-- https://www.thorne.com/take-5-daily/article/six-common-causes-of-brain-fog-and-how-to-combat-them
Brain fog: Causes and tips
-- https://www.medicalnewstoday.com/articles/320111.php
Hi Jim @jimhd, Here is the link from Rachel's @rwinney post earlier in the discussion.
Lidocaine-induced Seizures in Patients with History of Epilepsy: Effect of Antiepileptic Drugs
-- https://anesthesiology.pubs.asahq.org/article.aspx?articleid=1944222
Here are a couple of others that may also be helpful.
Lidocaine Infusion: A Promising Therapeutic Approach for Chronic Pain
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5323245/
Intravenous Lidocaine for Neuropathic Pain: A Retrospective Analysis of Tolerability and Efficacy
-- https://academic.oup.com/painmedicine/article/16/3/531/2460608
https://www.clinicalpainadvisor.com/home/topics/chronic-pain/
https://www.rxlist.com/
I have a chronic illness that effects your whole body with different symptoms, it’s lovely. I get it in my feet and wrists really bad
I am fighting polyneuropathy with no apparent help from the many doctors I've seen. They seem to do all the correct and accepted treatments and tests; however, I still have unremitting pain. What can I do to help myself??? Would appreciate any hints. Thank you.
They tell me it's Chiari malformation and a cyst in my spine. But don't know witch one is cause ing the nerve pain! They want to cut my head open but my husband thinks that want Help! Please help with a repely,tired of the pain.suppose to have surgery on Sept 4th and not sure if I should do it!
I understand your pain. They say I have Chiari malformation and don t think I need a second opinion! Really! Just cut my head open! Have you been to a nerve doctor? I'm praying for you that you find some answers, and know God is with you!