Living with Neuropathy - Welcome to the group

Cb oil doesn't work waste of my money

I agree oil waste of money

Lyrica helped for a while but not anymore! Any advice please help

@resawaller I have been on a quest for nearly a decade for a medication for my peripheral neuropathy. I've gone through the list my PCP could prescribe, then through the list from my neurologist and I'm down to the end of the list from my pain specialist. Lyrica was the first neuropathy medication that was starting to help until I had a serious reaction to it and was in the hospital for a few days. Two years ago I had a Burst DR spinal cord stimulator implant. After the six week recovery, it was turned on, and I had a taste of what it feels like not to be in pain. Now, two years later, I've concluded that it has become less and less effective. It does help, but my feet are hurting in the 5-8 range.

I've been taking a low dose of morphine sulfate contin for several years and I know that the pain would be much worse without it.

The neurologist and the pain specialist have been really great, and I would recommend seeking help from them.

You can go back through this discussion and see all of the various things people have found helpful. The list is long! Good luck in your search for the right medication.

Jim

The CBD oil under my tongue helped for sleep but then I developed canker sores until I stopped using it regularly. Neither the CBD oil nor the CBD/THC ointments have helped my pain. I just started using the Fibro cream, which seems to provide a little pain relief for a shot time... on a good day. I also use Gabapentin at night.

My most consistent pain relief is 600mg of Advil ( not generic Ibuprofen) 3x/day. However the risks of liver problems with that make me do that only occasionally.

@margottaylor A doctor prescribed either 3 or 4 (I think ir was 4) ibuprofen 3 times a day for me to use indefinitely for some pain, I think it was bursitis. After a while I chose to stop it despite it giving me relief - it just did not seem right to me. I wondered when I developed liver problems, cirrhosis, if that could have contributed but I was assured that it would not have. So, a high dose taken regularly can cause liver problems? I know that now being post-transplant I cannot take it but I think that is because of some conflict with the immunosuppressants,
JK

Wow JK... that's terrible. I'm horrified that former doctors didn't warm you about the risks of taking too much Ibuprofen. How long after you stopped taking it (for the Bursitis?) did you develop Cirrhosis? May I asked what your symptoms when you were that lead them to diagnose the Cirrhosis?

Have you seen a pain specislist? Mine helps me alot with my pain.

No , just my family doctor

@resawaller If you can do it, I think that a neurologist and then a pain specialist could be a big help. They have areas of expertise that a pcp won't have. I'm fortunate that my pcp understands that and refers me to whatever specialist he thinks can help me. I would especially want to talk with a specialist before having a doctor cut into my head!

Jim