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Does anyone have Ocular neuropathic pain

Posted by ashleyharris728 @ashleyharris728, Mar 5 7:33am

Hi, I am wondering if anyone has been diagnosed with ocular neuropathic pain. It seems like the condition is just recently being recognized and there are not a lot of known evidence-based treatments for it.
I’ve heard that some migraine treatments can be helpful for this condition. I’m currently in the process of trying to get Botox for migraine prescribed and approved. Has anyone tried this?
Thanks for sharing any advice, experiences, or encouragement you may have regarding this condition.
I feel alone, like I am the only person my age with severe dry eye that has led to this condition. (I’ve been dealing with treating severe dry eye for at least 5 years and I’m 40 now).

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ashleyharris728 | @ashleyharris728 | May 15 7:11am
In reply to @tubaozkocc "@ashleyharris728 maybe...btw,what is your symptoms?Is it same as dry eyes symptoms or was there unexplained symptoms?" + (show)
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@ashleyharris728 maybe...btw,what is your symptoms?Is it same as dry eyes symptoms or was there unexplained symptoms?

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@tubaozkocc basically I have severe dry eye due to lots of different issues (tears, oil glands, inflammation, etc). I have done all the usual treatments for them and there are even some signs of improvement, but the feelings of pain and discomfort persist. I guess my clinical picture of dry eye currently looks good enough that I “shouldn’t” be feeling so uncomfortable yet that is reality. They also did a couple of tests that demonstrated my ocular surface had high sensitivity, and as well as a test where they numbed the ocular surface and yet I still had the feelings of discomfort. This told them that my brain continued to produce a signal of pain even when it “shouldn’t”. So basically I have the pain associated with severe dry eye, I’m doing everything possible to treat the dry eye, my eyes are responding somewhat to the treatments, but the pain is always there. I don’t have symptoms beyond pain described by burning, grittiness, etc.

how about you?

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tubaozkocc | @tubaozkocc | May 15 4:15pm
In reply to @ashleyharris728 "@tubaozkocc basically I have severe dry eye due to lots of different issues (tears, oil glands,..." + (show)
Profile picture for ashleyharris728 @ashleyharris728

@tubaozkocc basically I have severe dry eye due to lots of different issues (tears, oil glands, inflammation, etc). I have done all the usual treatments for them and there are even some signs of improvement, but the feelings of pain and discomfort persist. I guess my clinical picture of dry eye currently looks good enough that I “shouldn’t” be feeling so uncomfortable yet that is reality. They also did a couple of tests that demonstrated my ocular surface had high sensitivity, and as well as a test where they numbed the ocular surface and yet I still had the feelings of discomfort. This told them that my brain continued to produce a signal of pain even when it “shouldn’t”. So basically I have the pain associated with severe dry eye, I’m doing everything possible to treat the dry eye, my eyes are responding somewhat to the treatments, but the pain is always there. I don’t have symptoms beyond pain described by burning, grittiness, etc.

how about you?

Jump to this post

@ashleyharris728 I am sorry to hear that.Mine feels like dry eyes, but there's no burning or gritty sensation. My eyes are constantly tired and burning. Hope botox helps you!

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