Living with Neuropathy - Welcome to the group

@kimchi19
Hi Crystal and welcome!
I am sorry, but I am not familiar with Parsonage Turner Syndrome.
Would you explain what it is and how it is impacting you?

I know poly usually means "many or multiple".
Does that mean you have neuropathy in multiple areas?
Please tell us how that is impacting you, too.

Have a great evening!
Ronnie (GRANDMAr)

HI,
I have had a half a dozen emg tests so I know them well. I don't want to say too much because sometimes knowing too much is not good. getting stuck with needles is no fun of course, but the process is manageable. I would just say to you while you are getting it done is to have the mindset that this test may help get you some answers. Hopefully that will keep you going while you endure some discomfort. Good luck to you.

Hi Crystal and welcome.
I had a EMG test a long time ago. Bit uncomfortable but none thing unbearable. Showed the doctor that I have nerve damage (erb’s palsy).
Sounds a bit similar to what you have. Started off paralyzed now dealing with great weakness and pain. Although hoping for you that yours might go back to normal. The test will show nerves affecting.

If you want ask the neurologist to give you a sedative before the EMG. It helped me some with my second round of them.

@age73 Regarding the EMG, try to research the doctor who will perform your EMG. I had an EMG performed by a well-respected neurologist and he had me jumping off the table with pain. It was so senseless. He said that it was because I was overly sensitive to pain. A month later I had a second more thorough EMG performed by another neurologist and only once did I experience slight discomfort. It was like night and day between the two. I hope you will find a doctor who is skilled at performing EMGs.

interesting! when I had the 2-part test done I couldn’t wait til it ended it was so uncomfortable. It might be compared to having a dentist numb your mouth with s needle, getting blood drawn or having a steroid shot in your foot: it all depends on who’s doing it. The Dr. who performed the EMG test on me had over 20 yrs. experience!

Regarding the EMG.....
I forgot to mention in my post, that the amount of discomfort (or not), can also depend on how inflamed you are when taking the test.
If you are very inflamed, like I was, I felt EVERYTHING!
If you are no inflamed or very little inflamed, your experience can be very different!
And yes, as mentioned, the 'touch' of the person doing the test will impact you as well.

Ronnie (GRANDMAr)

Don't mean to sound sexist, but after having been through several EMGs, I found that when women performed the test, it was less painful.

9 weeks ago I had my hB1ac levels come in at 74, this was up from previous from 44. I immediately started a low Kcal diet of 800 Kcals a day with 4 litres of water. 8 weeks later I was tested again. My new level was 45, I was taken off all medication officially by the diabetic nurse. (I had already stopped taking them 4 weeks earlier)
9 weeks and 3 days after the first test I have lost 48 lbs and have more energy than ever. I still have the damaged nerves in my feet but none of the inflammation that caused it and the pain I was getting every evening. I can sleep uninterrupted.

Hello @almighty, welcome to Connect. Thank you for posting. That is really great news that you were able to get off of all medication by changing your diet. I'm sure your story may be able to help other members with your symptoms. Are you able to share a little more about your diagnosis and details of your diet?