@tomcatrv4 You are correct. It’s a long wait. I’m a retired doc who trained at Mayo’s and I also have a friend who is still on staff and he basically got me in. I’ve been 3 times and the first time was crazy! The neurologist is a good guy and put me through the test ringer. Found out I have an IgM and IgG MGUS with anti-mag neuropathy. Saw a hematologist who is also a good guy and he ordered a bone marrow exam and PET exam. Bone marrow was negative but the PET showed 2 areas in my left collarbone, one of which was biopsied and they didn’t get any tissue. Hematologist told me to go home and get MRI of the area, which I have twice and the scan only showed degenerative changes and no tumor. So, I’ve just been waiting it out ever since. My biggest complaint is no follow-up! No messages from my care team. The neurologist said that Rituxan has a low chance of helping, whereas the hematologist said I could probably get some relief but it would take a long time (maybe up to a year). Not sure if I want my body to be in a state of immunosuppression that long and run the risk of getting infections and PML. It’s a crap shoot.