Rut Roh Rorge - PSA wrong direction
ADT / ARSI since June 2025
IMRT Oct 2025
PSA:
4/21/25 - 30.11
7/9/25 - 0.55
8/26/25 - 0.19
12/3/25 - 0.23
3/17/26 - 8.80
Methinks there's a problem. 😮😮😮
Results just popped up on the portal. Haven't heard from the Doc yet but I'm guessing another PSMA PET is in my near future. ALP is pretty high too, so liver or bone mets? Not yellow yet so I'm guessing bone. Maybe an ALP Isoenzyme test to determine source of elevation?
In any case, this sucks a little. 😡
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@mjp0512 Sorry you are dealing with this - a bummer for sure…
Hopefully, they can spot radiate it and be done with it.
Phil
@lag PS An ablation of L5 is possible too if no more radiation to the area is wise. He has has that done on a different spinal metastasis.
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1 Reaction@mjp0512
Radiation therapy is generally considered a safe, standard, and highly effective treatment for painful or symptomatic osseous (bone) metastases in the spine, including the L5 vertebral body.
I didn’t get such a specific explanation of my L4, which had a metastasis wrapped around it, But they were able to zap it with three sessions of SBRT. The problem had been there for a couple years, and the L4 had been weakened by it. It did include the fact that there was marrow infiltration. My PSA dropped to undetectable after the SBRT.
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6 ReactionsAppreciate everyone's encouragement. My concern at this point, and the reason I'm waiting to hear from my RO before speculating, is that one sentence in the report...
"Diffuse heterogeneous marrow signal suspicious for marrow infiltration is noted throughout the lumbar spine and sacral region."
That's way more than L5 so wait and see is better than Holy Crap for the time being.
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3 ReactionsGot another call from RO. SBRT to L5 recommended. Probably 2 sessions but he'll know for sure once he gets me on the table for targeting.
As far as the other "Diffuse heterogeneous marrow signal" I was concerned with; he feels it is most likely age-related sclerotic degeneration and not that much different from a lumbar MRI I had 3 years ago. Additionally, he said that if it was metastatic disease, he would expect my ALP to be 3 or 4 times what it is.
So... scheduling will call tomorrow to set up SBRT targeting and treatment dates. Hope it works and I can sleep through the night for a change.
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9 Reactions@mjp0512
Oh, what a relief 👍 !
Two zaps ⚡️ and it will be gone ! I am so happy for you mjp, I know that you once wrote that you are not worrying type but it must feel good to know that fix is straightforward and easy - yeayyy !!! : ))))
Let us know when will zapping happen so that we can send "good vibes" your way < 3. May that also prove to be a cure for your lumbar pain 🍀 !
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3 Reactions@surftohealth88 - Hey surf... you changed your avatar. I almost didn't recognize you. Love the frog!
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2 Reactions@mjp0512 Great news, bud! Your RO sounds like a good one.
Phil
Wow, this guy is not messing around. SBRT simulation scheduled for tomorrow.
Diagnostic MRI, results, and SBRT simulation in less than a week? Wonder if he bought a new boat or something that he has to pay off? 🤣🤣🤣
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6 Reactions@mjp0512
Love it! The quicker the better and sooner back to normal(well, sort of) for ya! 👍🙌
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