Living with Neuropathy - Welcome to the group

I was taking gabapentin for two years. I really felt no improvement, so I discontinued it. I already take 15 pills per day. When the pain in my feet gets to bad I take oxy 10 MG. It helps with all the other areas too. Flank pain is bad also.

Thanks so very much, Colleen for your info and help.
I just learned the entire Neurology Dept., including physicians, at Mayo Arizona does not accept Medicare. Mayo in Minnesota does, but they have to approve you first depending on the info you provide over the phone.

Don’t know much about AZ but you may get in to MN through the internal medicine dept.

Are there posting that are newer? All of these date back to 2017

Hello @ruthanderson, welcome to Connect. Yes there are posts that are newer. If you go to the top of the discussion and click the option Oldest to newest and change it to Newest to oldest you will see all the newer posts in chronological order from newest to oldest.

May I ask if you are looking for some specific information or if you have a question you are trying to get answered?

John

New to the group I have idiopathic neuropathy in both feet. I'm using Lyrica and Gabapentin. I've also have had the DRG implantation. Medications does not seem to help and the DRG is helpful but only to a point. Of course nights are awful. I'm thinking about coming to Mayo and was wondering which location is the best and how do you get an appointment? I live in California.

Hi @ruthanderson, I also have idiopathic small fiber peripheral neuropathy but only have numbness in both feet and ankles. I've never had the pain. If you would like to seek help from Mayo Clinic, you can call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:
-- https://www.mayoclinic.org/appointments

I'm partial to the Mayo Clinic Rochester Campus but that may be because it's closer to me. I'm sure the Florida and Arizona Mayo Clinic Campuses are good as well. Is it possible to get your doctor to call and give you a referral? I think sometimes that might be helpful.

I was not familiar with the DRG implantation but did find another similar discussion you may be interested in reading through.

Groups > Chronic Pain > Has anybody had an implantable neurostimulator for chronic pain?
-- https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/

John

Did your MD explain to you that gabapentin and Lyrica are virtually the same drug?

I am new to this discussion. I have hereditary neuropathy numbness in my feet. Am searching for something to help/relieve the numbness as it affects my walking/balance/feeling (of course!). Just recently started gabapentin but have read it does not help numbness. HELP! I am getting desperate.....thank you

@katrose - since I have the same problems as you, tho not from the same cause, I am curious about shoes (female type). As balance is a problem, I'm wondering about comfy shoes with good soles (thick and even).