Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

I've been on this group for a few months now, but haven't posted for a while. The reason is that I've been getting treatment, that's been working, for my peripheral neuropathy and wanted to see results before I posted about it. My results are a 90% improvement in symptoms. Do I still have some discomfort? yes Is it a great improvement? YES! I can highly recommend it. There was one lady that was getting treatment told me that she's had PN for 10 years, been to many doctors who couldn't help her. The last doctor told her to stop looking for a cure because there isn't one. When she walked into this place she could hardly walk. Now, her walking has VASTLY improved. I've seen her walk myself.

PLEASE, consider contacting COMPLETE REHAB in Clemmons, NC. The owner is Bret Duffey, a former Marine. Their website is https://crtherapy.com/ . Their phone number is (336) 778-0292. They've treated over 3,000 people and they specialize in all types of neuropathy, and have had patients drive from as far away as West Virginia, a 6 hr one way drive. I personally have been driving a 3 hr. round trip for their treatments. I HIGHLY recommend them to anyone suffering from this condition. If you call them, please tell them that Walter McIntyre told you about it. I'll get nothing for it, but just want Bret, Emily & the team to know that I appreciate their help so much. I truly believe that GOD led me to them through a Google search.

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could you tell us what this treatment involves — we don't need details, just how it works — THANKS

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@waltermc

I've been on this group for a few months now, but haven't posted for a while. The reason is that I've been getting treatment, that's been working, for my peripheral neuropathy and wanted to see results before I posted about it. My results are a 90% improvement in symptoms. Do I still have some discomfort? yes Is it a great improvement? YES! I can highly recommend it. There was one lady that was getting treatment told me that she's had PN for 10 years, been to many doctors who couldn't help her. The last doctor told her to stop looking for a cure because there isn't one. When she walked into this place she could hardly walk. Now, her walking has VASTLY improved. I've seen her walk myself.

PLEASE, consider contacting COMPLETE REHAB in Clemmons, NC. The owner is Bret Duffey, a former Marine. Their website is https://crtherapy.com/ . Their phone number is (336) 778-0292. They've treated over 3,000 people and they specialize in all types of neuropathy, and have had patients drive from as far away as West Virginia, a 6 hr one way drive. I personally have been driving a 3 hr. round trip for their treatments. I HIGHLY recommend them to anyone suffering from this condition. If you call them, please tell them that Walter McIntyre told you about it. I'll get nothing for it, but just want Bret, Emily & the team to know that I appreciate their help so much. I truly believe that GOD led me to them through a Google search.

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Yes. What are the treatments that work? What is the cost? I live in Ohio so this would be very difficult to do. But maybe someone around me does the same. Any information you can give would be great.

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@waltermc

I've been on this group for a few months now, but haven't posted for a while. The reason is that I've been getting treatment, that's been working, for my peripheral neuropathy and wanted to see results before I posted about it. My results are a 90% improvement in symptoms. Do I still have some discomfort? yes Is it a great improvement? YES! I can highly recommend it. There was one lady that was getting treatment told me that she's had PN for 10 years, been to many doctors who couldn't help her. The last doctor told her to stop looking for a cure because there isn't one. When she walked into this place she could hardly walk. Now, her walking has VASTLY improved. I've seen her walk myself.

PLEASE, consider contacting COMPLETE REHAB in Clemmons, NC. The owner is Bret Duffey, a former Marine. Their website is https://crtherapy.com/ . Their phone number is (336) 778-0292. They've treated over 3,000 people and they specialize in all types of neuropathy, and have had patients drive from as far away as West Virginia, a 6 hr one way drive. I personally have been driving a 3 hr. round trip for their treatments. I HIGHLY recommend them to anyone suffering from this condition. If you call them, please tell them that Walter McIntyre told you about it. I'll get nothing for it, but just want Bret, Emily & the team to know that I appreciate their help so much. I truly believe that GOD led me to them through a Google search.

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@waltermc, thank you for sharing an update with us. I'm glad your treatment is helping with your symptoms. I too would like to know specifically what the treatment involves. I went to the website but it doesn't say anything but it does show a photo here that looks much like the stimulation therapy and treatments offered by Realief Neuropathy Center which are expensive with no guarantees. I'm wondering if they have treatments like Myofascial Release Therapy as part of their treatment? Here's a discussion that talks about Myofascial Relief Therapy:

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Thank you so very much for the information you have posted here and congratulations on your health improvement. I have been dealing with serious neuropathy for several years and I generally look to grasp at any straws as my condition seems to worsen.
I have tried many different treatments but none have been successful. I live a very long distance away from their clinic but will travel just about anywhere to find relief.
If you can please provide more information about their treatments before I commit to traveling that distance, it will be very much appreciated.

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I started using an Anodyne Pro 300 several weeks ago and am getting some relief. I use it twice a day morning and night. I put it on one foot/leg then the other foot/leg for 25 minutes on each leg. Hopefully it will continue to improve and will keep you updated. I think it cost around $1500 and is approved by FDA but Medicare does not cover.

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I could be very wrong, and please forgive me if I'm wrong but, I believe this is basically laser therapy. Some physical therapy offices offer the treatment and they use their own machine. May be a cheaper option than having to buy the unit although the home unit may maximize your relief. Maybe call some PT offices and just ask if they do laser therapy for peripheral neuropathy. That way if you want to give it a try you know which office you want your doctor to refer you to.

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I will be moving to Bradenton, FL in a few weeks–does anyone know of any physicians that specialize in PN?

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Every patient is different so each person is Evaluated separately. Treatment depends on each individual and their own symptoms. He doesn’t know exactly what he’s going to do with you until after he asks a series of specific questions to help identify YOUR specific type of Neuropathy.

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@johnnyb

I will be moving to Bradenton, FL in a few weeks–does anyone know of any physicians that specialize in PN?

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Dr Van Passel is located in Sarasota that is my dr there are several in the practice Intercoastal Meidical 941-906-7155 era through she is very good and was the Dr that diagnosed me. I would make appt as there might be a wait there, she is known as the best in Neurology and very smart

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Thanks–much appreciated. JB

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@goetf4997

Thank you so very much for the information you have posted here and congratulations on your health improvement. I have been dealing with serious neuropathy for several years and I generally look to grasp at any straws as my condition seems to worsen.
I have tried many different treatments but none have been successful. I live a very long distance away from their clinic but will travel just about anywhere to find relief.
If you can please provide more information about their treatments before I commit to traveling that distance, it will be very much appreciated.

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Brett @ Complete Rehab told me that you spoke with him yesterday. Brett is a great, caring professional and will help you all he can with his experience. If you work it out where you can get treatment there, please come back on this group and let everyone know how it went. Brett has a lot of different treatments he uses depending on the intitial consultation questions and answers. I hope all is well and he can get you some relief, he certainly helped me.

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@jo54

If the crystals inside your ear are out of alignment you can have vertigo. You need to see an ENT if you have this problem

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Hi–I know I have tried the maneuver to get crystals back in alignment through my Dr and also at home using the technique. I know it helps a lot of people. Unfortunately, it didnt help me so I started youtube searching… I came across this Dr that does a technique that uses acupressure you can do yourself. For some reason, that DID help me.,There are all kinds of information about different techniques on there, and Ill try anything to see if it works. if one type doesnt, then try another.. 🙂

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@waltermc

Brett @ Complete Rehab told me that you spoke with him yesterday. Brett is a great, caring professional and will help you all he can with his experience. If you work it out where you can get treatment there, please come back on this group and let everyone know how it went. Brett has a lot of different treatments he uses depending on the intitial consultation questions and answers. I hope all is well and he can get you some relief, he certainly helped me.

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I did speak with Brett yesterday. He surprised me with a telephone call after I completed an on line form on his website. This in itself shows that he really cares about what he does and who he is. Also the fact that he is ex-marine also says a great deal.
I am a great distance away from his practice and if I can see him for help, trust me if he helps I will let as many know as possible. This condition has changed my life and really slowed me almost to a stop. I have also tried everything else available with little or no success.
Thank you so much Waltermc for your courage to speak up.

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@waltermc

I've been on this group for a few months now, but haven't posted for a while. The reason is that I've been getting treatment, that's been working, for my peripheral neuropathy and wanted to see results before I posted about it. My results are a 90% improvement in symptoms. Do I still have some discomfort? yes Is it a great improvement? YES! I can highly recommend it. There was one lady that was getting treatment told me that she's had PN for 10 years, been to many doctors who couldn't help her. The last doctor told her to stop looking for a cure because there isn't one. When she walked into this place she could hardly walk. Now, her walking has VASTLY improved. I've seen her walk myself.

PLEASE, consider contacting COMPLETE REHAB in Clemmons, NC. The owner is Bret Duffey, a former Marine. Their website is https://crtherapy.com/ . Their phone number is (336) 778-0292. They've treated over 3,000 people and they specialize in all types of neuropathy, and have had patients drive from as far away as West Virginia, a 6 hr one way drive. I personally have been driving a 3 hr. round trip for their treatments. I HIGHLY recommend them to anyone suffering from this condition. If you call them, please tell them that Walter McIntyre told you about it. I'll get nothing for it, but just want Bret, Emily & the team to know that I appreciate their help so much. I truly believe that GOD led me to them through a Google search.

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I have been to select health of the carolinas and received anodyne therapy, electro therapy, laser therapy, and still taking several recommended supplements and vitamins with minimal improvement, however it may have kept me from continuing to get worse. Is this the type of treatment you received at Complete Rehab? Thanks for your posting, because many of us are still looking for solutions or pain relief.

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