Tonmya is a game changer for me!

Posted by Beejenigma @beejenigma, Dec 26, 2025

Just got an RX for the new drug, Tonmya. It is amazing. My sleep has completely changed now. Used to have chronic insomnia. I would take arthritis strength tylenol, 300 mg gaba, 8 mg LDN, 10 mg THC and sometimes even .5 alpraz to go to sleep and I would still not get to sleep for 3 hours. I would frequently wake up around 3! Now I am sleeping within an hour and sleeping until 7 or 8 a.m.! See if you can get an RX for it. I don't know if this is going to last but it is great.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for jeannesf1 @jeannesf1

@beejenigma Good to know! in which form? How much THC? I’ve tried a tincture and gummies and didn’t work at all.

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@jeannesf1 Full spectrum cannabis with THC. I usually feel like anything over 10 mg during the day is too much. I just use 10 at bedtime and only during the day when needed. I use powdered THC or tincture on the tongue. If you felt no effect, use a bit more and titrate up.

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Profile picture for Beejenigma @beejenigma

@steve92 Medical cannabis works well

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@beejenigma She tried that just 2 or 3 times and didn't see any relief. However.....she is a retired RN, old school, born, raised and lived her whole life in rural midwest farm life, and her views of cannabis is that it it a bridging drug to other more addicting drugs. I've tried to explain that most of the medical cannabis has the addicting part removed.

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Profile picture for daisy17 @daisy17

@steve92 There's many articles on-line about this, here is one: https://www.verywellhealth.com/low-dose-naltrexone-ldn-for-fibromyalgia-cfs-716070

I'd be happy to answer any questions your wife has about how LDN has helped me with my fibromyalgia symptoms.

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@daisy17 Thank you. I'll let her know.

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Profile picture for bunstuffer @bunstuffer

@daisy17 I've taken cyclobenzaprine and every other drug ever used for fibro. My best results have been with plain old Tylenol. It doesn't have side effects that put me in the hospital or make me sick when used as prescribed. I can commiserate with you since I was diagnosed in 1991 and nothing has really been satisfactory. Hope this keeps working for you.

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@bunstuffer
I wanted to try it but currently cost $950. I’m on Medicare. So will probably just wait to see if it gets cheaper

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Profile picture for Beejenigma @beejenigma

@jeannesf1 Full spectrum cannabis with THC. I usually feel like anything over 10 mg during the day is too much. I just use 10 at bedtime and only during the day when needed. I use powdered THC or tincture on the tongue. If you felt no effect, use a bit more and titrate up.

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@beejenigma
My body is so weird that THC makes my body vibrate more 😢

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Profile picture for ecmoandrrt @ecmoandrrt

Norcyclobenzaprine (nCBP) is the primary active metabolite of the muscle relaxant drug cyclobenzaprine (Flexeril), formed when the body processes cyclobenzaprine.
Traditional Cyclobenzaprine (Oral): Swallowed, goes to the stomach, then the liver, where a large portion is converted to norcyclobenzaprine, leading to accumulation and drowsiness.
Tonmya (Sublingual): Dissolves under the tongue, goes directly into the bloodstream, bypassing the liver, and results in less of the metabolite that causes daytime sedation.

I was just diagnosed with Fibromyalgia(age 69) 3 months ago. A lot of bloodwork, CT scans, MRIs etc. And have seen many Drs in 2025.
The pain is excruciating.
I take Vicodin 10mg Q8, Flexeril 5 mg Q8. Aspirin 325 mg Q8 or PRN. The Flexeril doesn’t make me tired and it works in concert with the Vicodin to give me some relief.
Sleep? Ha. Glad gummies help. Sigh.
And because the pain is so bad my BP is dangerously high(which is being treated also).

I have excellent Drs. because I was in healthcare for 35 years and know the good ones. Lol.
All of this sucks. Pain and brain fog.

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@ecmoandrrt Have you checked into LDN, low-dose naltrexone? It helped me very much.

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Profile picture for leoandbear @leoandbear

@bunstuffer
I wanted to try it but currently cost $950. I’m on Medicare. So will probably just wait to see if it gets cheaper

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@leoandbear Are you referring to Tonmya? It's sad that medicine is so expensive in our country.

I've mentioned before how LDN low-dose naltrexone helped me. However, it's not covered by insurance so I pay $115 for a 3 month supply. Worth every penny to me though.

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Hello. Does the $115. Include Doctor fee? I pay $20/month for doctor (membership fee for minimal 6 months visits) and $60. For 1 and half month of LDN. This is right now because I’m temporarily trying the 6mg, so taking 4.5mg pill plus 1/2 to equal 6mg. Will be getting 6mg pills after this if I decide to stay on the 6mg. Just wondering what the average cost is for LDN. My insurance doesn’t cover the doctor and doesn’t have doctors that will prescribe it.

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Profile picture for jeannesf1 @jeannesf1

Hello. Does the $115. Include Doctor fee? I pay $20/month for doctor (membership fee for minimal 6 months visits) and $60. For 1 and half month of LDN. This is right now because I’m temporarily trying the 6mg, so taking 4.5mg pill plus 1/2 to equal 6mg. Will be getting 6mg pills after this if I decide to stay on the 6mg. Just wondering what the average cost is for LDN. My insurance doesn’t cover the doctor and doesn’t have doctors that will prescribe it.

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@jeannesf1 No, the $115 is the cost from the pharmacy for the LDN pills. Are you sure no doctors in your health network will prescribe it? I got my prescription from a pain clinic that was in my network. I have since learned my PCP also prescribes it.

My fibromyalgia symptoms were so debilitating, I would have been willing to pay out of pocket to see a doctor who would prescribe it for me. If you can locate a compounding pharmacy in your area, maybe they can help you find a doctor who prescribes it. Taking LDN totally changed my life back to normal before fibro. I have read, however, that not everyone responds to it as well as I have.

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Profile picture for daisy17 @daisy17

@jeannesf1 No, the $115 is the cost from the pharmacy for the LDN pills. Are you sure no doctors in your health network will prescribe it? I got my prescription from a pain clinic that was in my network. I have since learned my PCP also prescribes it.

My fibromyalgia symptoms were so debilitating, I would have been willing to pay out of pocket to see a doctor who would prescribe it for me. If you can locate a compounding pharmacy in your area, maybe they can help you find a doctor who prescribes it. Taking LDN totally changed my life back to normal before fibro. I have read, however, that not everyone responds to it as well as I have.

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@daisy17 yes, you’ve been very helpful. Thank you. Great idea. I need to try harder to get it here. I’m in California and the pharmacy is in Texas. LDN has been helpful to me too. Your encouragement is greatly appreciated.

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