Has anyone been diagnosed with low carbon dioxide (CO2)?

@vall5 Hi! I believe @erinhastedt shared the link as far as PT, I have not started, mostly breathing exercises I believe @azlynn5 I think is already doing them, she could elaborate 💗

Thank you @moonlight21

@moonlight21 I don't have a PT plan but I'd love to hear what @azlynn5 is doing? I'm doing breathing exercises, water exercise, the Breather and acetazolomide.

I’m also doing breathing exercises, water walking, the Breather. I’ve just switched to methazolamide, to see if I get better results. I saw PT for a few sessions since I have thoracic scoliosis which can be contributing to my lung issues. She recommended a simple exercise of book opening with arms and also Nidra yoga for relaxation. I’d like to revisit PT to see if there are any other things that I could be doing.

I was also diagnosed with this 3 years ago at Mayo.
I went on Acetazolamide for approx. 5 months and the side effect was too much to continue not wanting to get out of bed everyday. It did not help my symptoms over the 5 months. Next I was out on Methazolamide, but when I increased the dosage I got a very bad bloodshot left eye and ringing/hissing in the ears in January this year, was told to stop the med but did not resolve the ringing/hissing in my ears or the weird feeling o have in my head. I was then put on Cellebrex but ringing/hissing still persistent, was told to stop Cellebrex for two weeks but did not feel any different on or off this med other than it helped me sleep through the night.
My symptoms seem to be worsening.
I had a few surgeries where I did. Ot workout for some months and that time off did not help my post COVID Vaccine adverse effects. Still had the same issues when starting to workout again.
I am a shell of the athlete I used to be, can no long do marathons or Ironman races, I can only get to a certain fitness level and not beyond like I used to training to races.
These meds have serious side effects for me and not sure what to do from here.

@erinhastedt

I was also diagnosed about 3 years ago at Mayo Aerospace Clinic and my symptoms are worsening. Tried Acetazolamide but side effect of fatigue was too great, then tried Mathazolamide but got a deep bloodshot left eye and ringing/hissing in my ears right after I increased the dosage and stopped taking it. Still have ringing/hissing in my ears, slight headache everyday and pressure in head. I was also out on Cellebrex and felt no difference on or off the med except it helped my sleep better from nerve related pain in my lower legs that appeared after Covid vaccines and my blood clot. My heart rate also increased right after the vaccines when ever I would exert myself and working out. Been on Nebivolol for years now to lower heart rate just to workout but nowhere near level I used to be.
I recently had a Spike Protein test done at LabCorp showing high level if 23215 u/ml years after vax or any covid infection. Not sure if this is causing my symptoms but I read high spike protein level can indirectly cause respiratory alkalosis and vaccines can possibly cause as well. I was healthy prior to the vaccines and all went downhill rapidly for me.
I also use the breather but my symptoms have not improved.

@tcastigl1 I'm so sorry to hear you've had no improvement with the treatments. I still don't really know if the acetazolmide works for me but methazolomide gave me excruciating head pressure. I felt better for a while, but in the past few months I feel like I'm back to the beginning for no particular reason. It's like I fell off a cliff. Did your doctor recommend getting the Spike Protein lab done? I would be curious to see what mine is too. There has to be something still going on in the background here because people just aren't getting better. I just don't know what they can do about it. I hope you find some relief, hang in there!

Thanks for responding. My cycling has improved a bit but running and swimming are more affected and saw online why this is the case. This is all very complex.
I got the Spike Protein test on my own but several Mayo doctors will not comment on it despite seeing a lot online about this and the issues it can cause.
I have been describing it feels like my endurance fell off a cliff, these meds have serious side effects and have not helped me a lot.
I do not know what else to do, have follow up with Aerospece Clinic doc on July, all I know is that these vaccines caused serious issues in my body that I could not possibly even make up and now seeing many others on Connect enforce this belief.

@erinhastedt

The Spike Protein lab test at LabCorp costs $69.00. I ordered and paid for the test on their website, made an appointment and went to a lab here in Arizona.

I am currently not taking any meds for the Alkalosis, only Nebivolol that lowers my heart rate so I can do any workouts.

@tcastigl1 Interesting. I can't run anymore but I do run in the pool. I have the opposite, a very LOW heart rate. I do think the medicines impact my stamina and ability to build strength. When I've taken some weeks off I am able to build more stamina and muscles don't tire as easily. I hope we can all get some relief soon but I fear this is a long battle and no one really knows what it looks like in the future. The vaccine and virus have so many long-term effects.