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@erinhastedt

I was also diagnosed about 3 years ago at Mayo Aerospace Clinic and my symptoms are worsening. Tried Acetazolamide but side effect of fatigue was too great, then tried Mathazolamide but got a deep bloodshot left eye and ringing/hissing in my ears right after I increased the dosage and stopped taking it. Still have ringing/hissing in my ears, slight headache everyday and pressure in head. I was also out on Cellebrex and felt no difference on or off the med except it helped my sleep better from nerve related pain in my lower legs that appeared after Covid vaccines and my blood clot. My heart rate also increased right after the vaccines when ever I would exert myself and working out. Been on Nebivolol for years now to lower heart rate just to workout but nowhere near level I used to be.
I recently had a Spike Protein test done at LabCorp showing high level if 23215 u/ml years after vax or any covid infection. Not sure if this is causing my symptoms but I read high spike protein level can indirectly cause respiratory alkalosis and vaccines can possibly cause as well. I was healthy prior to the vaccines and all went downhill rapidly for me.
I also use the breather but my symptoms have not improved.

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Replies to "@erinhastedt I was also diagnosed about 3 years ago at Mayo Aerospace Clinic and my symptoms..."

@tcastigl1 I'm so sorry to hear you've had no improvement with the treatments. I still don't really know if the acetazolmide works for me but methazolomide gave me excruciating head pressure. I felt better for a while, but in the past few months I feel like I'm back to the beginning for no particular reason. It's like I fell off a cliff. Did your doctor recommend getting the Spike Protein lab done? I would be curious to see what mine is too. There has to be something still going on in the background here because people just aren't getting better. I just don't know what they can do about it. I hope you find some relief, hang in there!