Nerve related hearing loss

That is what happened to me. Did you see an ENT and get a head scan? Are u getting steroid shots in your ear or orally I did both. For me the tinnitus only lasted a few days but unfortunately hearing never came back in the ear I lost hearing in and that was 5 years ago.

Steroids did nothing for me. The brain MRI showed nothing. They think it may be viral but they really don’t know.

The terms 'nerve related hearing loss' and/or' nerve deafness' are often used to describe various types of hearing loss. It doesn't matter if it's sudden or progressive. In most cases of hearing loss that is considered 'sensorineural' which involves the entire hearing mechanism. In most cases the auditory nerve that sends signals to the brain for interpretation is functional. However, due to damage in the inner ear (cochlea) it is not stimulating that auditory nerve. Thus, the term 'nerve deafness. In this instance, the potential treatment is likely to involve bypassing the cochlea to get signals to the brain for interpretation. This is where cochlear implants enter the picture.

Did any of the medical providers mention cochlear implants if/when the treatment they suggested and provided did not work?

As a cochlear implant recipient myself, who was told because I had 'nerve deafness' there would never be anything that could help me, I strongly suggest, that if your hearing does not come back after steroid treatment, that you seek information about the cochlear implant option.

http://www.hearingloss.org http://www.acialliance.org http://www.hhf.org are all good resources for information.

3 years ago——your dizziness will get better, I never had much ringing , mine is more like white noise. I have had no hope of getting it fixed. Crowd situations are the worse , I also can’t tell direction that sound comes from. All in all I get along fine, be careful getting up quickly if you are on your back, dizziness can hit you fast. It’s really aggravating but I live with it . I’m pretty sure the doctors don’t know what causes it so they tell you something like a virus caused it , who knows??

I got SDHL on my left ear and did steroids, oraly and injection, and the hyperbaric oxygen treatment, and nothing helped. Tried regular hearing aid but it didn't work, currently waiting for a cros type of hearing iads, where the sounds will be send to my good ear. If this doesn't work well then my only option will be an implant, but not sure if i want to go there. Also, contemplating the idea of filing a claim to my insurance for not testing my hearing the first day i went to urgent care, and it took them 3 weeks to figure out i had sshl, i think if i would have go on steroids right away my hearing loss wouldn't be so severe. I am pretty healthy 50 years old. Did anyone try to file.a claim? Any suggestions, or experiences? I don't want to loose money on that, already had to pay a lot for my hearing aids and all the deductible for my many appointments , tests, and treatments

I had micro vascular decompression (MVD) for hemifacial spasm on my left side of my face. When I woke up from the surgery, I could not hear anything from my left ear. I had the steroid shots in my ear but it did nothing. I went thru the dizziness and balance faze but that got better over time. I now have the cros-hearing aid for my left ear. It only helps if you have someone sitting right next to you on the cros side. Otherwise, all it does is amplify all the background noise into your good ear hearing aid. You still cannot determine which direction the sound is coming from. Many times I prefer to leave it at home because it just makes all that background noise going into my good ear too much to handle.

Sudden hearing loss is most common between the ages of 21-50. It struck me as a healthy 22 year old. I am now 69 and my hearing never returned. I had a summer of being dizzy after it happened. I had surgery (no MRI machines available in 1979 where I was) to check for a tumor—negative. I still hear an untuned radio noise in my left ear, but 99% of the time I can pay no attention to it. I am directionally challenged. In a car, I never know where that siren is coming from until I see the lights. I tried an expensive in-ear hearing aid when I was in my 40s and never got adjusted to having molded plastic “plug” in my ear all day. Many people do not even know I have a hearing loss.

@julieo4 ... Amplifier worn around my neck about $50 two ear buds works for me to hear when hearing aids did not help my Genetic Nerve Deafness ...

@mapi ... An Amplifier works for me about $50 worn around the neck 2 ear buds ...my hearing doctor gave up on me hearing aids did not work . I found out about the amplifier from church's new system for hard of hearing . 🙏🌻

@sandymdmvb i only have 4% capacity of word recognition so not sure if an amplifier would work for me. But maybe for only $50 its worth the try. Thank you!