Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

Profile picture for jc76 @jc76

@mauricepower
Could you expand on your question?

Are you talking about the surgery site?

And if yes when did you have your procedure?

Jump to this post

@jc76
The burning sensation is at the centre of my chest. It may be angina.
The surgery was September 12th, 2025.

REPLY
Profile picture for mauricepower @mauricepower

@jc76
The burning sensation is at the centre of my chest. It may be angina.
The surgery was September 12th, 2025.

Jump to this post

@mauricepower
Have to make clear not a medical professional and passing on my own personal experience. Based on your post (my wife and I have this burning sensation) it sounds like heart burn (GERD).

I and my wife have are being treated for GERD. Mine, I was told, is called silent reflux disease.

Angina I have read (not a medical professional) is usually a pain, tightness, etc. It would indicate need to seek medical attention as signals a cardiovascular problem that needs to be diagnosed and medically treated.

Have you informed your cardiologist of this burning sensation?

REPLY
Profile picture for jc76 @jc76

@mauricepower
Have to make clear not a medical professional and passing on my own personal experience. Based on your post (my wife and I have this burning sensation) it sounds like heart burn (GERD).

I and my wife have are being treated for GERD. Mine, I was told, is called silent reflux disease.

Angina I have read (not a medical professional) is usually a pain, tightness, etc. It would indicate need to seek medical attention as signals a cardiovascular problem that needs to be diagnosed and medically treated.

Have you informed your cardiologist of this burning sensation?

Jump to this post

@jc76
Good morning,
The pain has disappeared today. I think it may have been a result of bruising on my chest from the paddle of the echocardiogram. There’s a significant bruise on my chest.
That’s my theory anyway.
Thanks.

REPLY
Profile picture for mauricepower @mauricepower

@jc76
Good morning,
The pain has disappeared today. I think it may have been a result of bruising on my chest from the paddle of the echocardiogram. There’s a significant bruise on my chest.
That’s my theory anyway.
Thanks.

Jump to this post

@mauricepower
Having had those echocardiograms many times they can really push hard into your skin don't they.

Make sense if you have bruise on your chest as cause of pain.
Take care.

REPLY

Yes please include me. 55 year-old female with no prior cardiac history or family history and after having three bouts of Covid have now come up with AV second-degree block, resulting in a pacemaker installed eight days ago. Looking for some support as I’m having some lasting effects that are not pleasant and have questions about beta blockers and the experience taking them.

REPLY

I have had a pacemaker and been on beta blockers for 3 years now. My pacemaker was due to open heart surgery, my heart would not start after taking me off the mechanical heart or whatever that is. I only take 25mg of Metoprolol succinate and my cardiologist took me off of it last year but I started with palpitations. He was like well if you start A-Fib we'll just put you on blood thinners. I was like umm, no thanks. Put me back on the Metoprolol succinate.

Also, 3 years and my pacemaker still is uncomfortable often and sometimes just hurts.

REPLY
Profile picture for snc6007 @snc6007

I have had a pacemaker and been on beta blockers for 3 years now. My pacemaker was due to open heart surgery, my heart would not start after taking me off the mechanical heart or whatever that is. I only take 25mg of Metoprolol succinate and my cardiologist took me off of it last year but I started with palpitations. He was like well if you start A-Fib we'll just put you on blood thinners. I was like umm, no thanks. Put me back on the Metoprolol succinate.

Also, 3 years and my pacemaker still is uncomfortable often and sometimes just hurts.

Jump to this post

@snc6007
Have you compared your pacemaker pain to certain movements or pressure on it. I have had one for over 20 years. If I move my arms a certain way I get pain. Sometimes sharp sometimes dull. Your body will tell you when certain movements are the source. It is good to remember you have a foreign device in your body so you are going to feel discomfort if you aggravate the tissues and muscles around it. Again comes from my EP.

If you lay on your pacemaker you can also cause pressure on it and it will hurt. I do water aerobics 5 days a week. Even though I have had a pacemaker for 20 years (on my 3rd device) I still cannot do certain movements of my left arm without causing pain.

The mechanical heart you talk of is the device (heart bypass) that completely takes over of your heart pumping blood throughout your body. When you have any surgery of the heart you can disrupt normal electrical flow of your heart.

Your heart (per my HF doctor) has an automatic pulsing. It will beat at 82 bpm after heart transplants. Never goes up or down as the nerves going to brain are no longer connected. Why your heart would not start is another matter but could be from surgery have no idea as not a medical expert but a question you should have your cardiologist answer.

The biggest threat of AFIB is stroke. The strokes happen because blood will clot in atrium because is not pumping blood out. Then the clot can travel to your brain, lungs, etc. which is life threating not the AFIB. I think your cardiologist was trying to say this but not in a good way for your to understand.

A cardiologist will prescribed a blood thinner or anti clotting medications if you have sustained AFIB. I had AFIB on and off and not until I had sustained AFIB for 4 hours did they put me on Eliquis.

REPLY

I was under the impression that the chest discomfort/pain might stop after the pacemaker becomes imbedded. It sounds like that is not case.

REPLY
Profile picture for jc76 @jc76

@snc6007
Have you compared your pacemaker pain to certain movements or pressure on it. I have had one for over 20 years. If I move my arms a certain way I get pain. Sometimes sharp sometimes dull. Your body will tell you when certain movements are the source. It is good to remember you have a foreign device in your body so you are going to feel discomfort if you aggravate the tissues and muscles around it. Again comes from my EP.

If you lay on your pacemaker you can also cause pressure on it and it will hurt. I do water aerobics 5 days a week. Even though I have had a pacemaker for 20 years (on my 3rd device) I still cannot do certain movements of my left arm without causing pain.

The mechanical heart you talk of is the device (heart bypass) that completely takes over of your heart pumping blood throughout your body. When you have any surgery of the heart you can disrupt normal electrical flow of your heart.

Your heart (per my HF doctor) has an automatic pulsing. It will beat at 82 bpm after heart transplants. Never goes up or down as the nerves going to brain are no longer connected. Why your heart would not start is another matter but could be from surgery have no idea as not a medical expert but a question you should have your cardiologist answer.

The biggest threat of AFIB is stroke. The strokes happen because blood will clot in atrium because is not pumping blood out. Then the clot can travel to your brain, lungs, etc. which is life threating not the AFIB. I think your cardiologist was trying to say this but not in a good way for your to understand.

A cardiologist will prescribed a blood thinner or anti clotting medications if you have sustained AFIB. I had AFIB on and off and not until I had sustained AFIB for 4 hours did they put me on Eliquis.

Jump to this post

@jc76 My pacemaker is very close to the surface as I do not have a lot of fat to pad it. In addition, I am highly allergic to nickel which the pacemakers have from what I understand and I do itch often in that area. They had no choice because they didn't have the leadless pacemakers at the time. I went into complete heart block after my surgery. They had me on an external pacemaker for 4 days but my heart never started so...

I've discussed with my cardiologist and he doesn't like the risk of going in and replacing the pacemaker until it is absolutely necessary.

REPLY
Profile picture for snc6007 @snc6007

@jc76 My pacemaker is very close to the surface as I do not have a lot of fat to pad it. In addition, I am highly allergic to nickel which the pacemakers have from what I understand and I do itch often in that area. They had no choice because they didn't have the leadless pacemakers at the time. I went into complete heart block after my surgery. They had me on an external pacemaker for 4 days but my heart never started so...

I've discussed with my cardiologist and he doesn't like the risk of going in and replacing the pacemaker until it is absolutely necessary.

Jump to this post

@snc6007
When my EP was deciding on my surgery he chose to put my device below my chest muscle. He did this because I did not have enough skin and fat in chest area to put below skin.

I don't think devices are nickel. However you can check with manufacturer of your device (all of them have web sites) where you can asked questions. I have a Boston Scientific device and have gone on their web site to asked question many times.

My EP stated it takes a year for the body to encapsulate the device. This encapsulation is the body reacting to a foreign device. It will help with the feeling of something there but it does take time.

REPLY
Please sign in or register to post a reply.