1. < Neuropathy
Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Nancy Banks | @banksnc49 | Jul 5, 2018
In reply to @swiss "have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular..." + (show)
@swiss

have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular in Texas who are authorized to harvest your own fat cells after liposuction and get your own stem cells out of it the same day - these will then be applied IV or IT injection and may repair nerves and other tissues as well as it may reverse the demylielisation into remylielisationialisation damaged peripheral or central nerves, this may be the future of medicine as such as these injected stem cells can change into any type of needed cells.

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Thanks John. I sure appreciate it.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 5, 2018

Hi @swiss, @sdemaria, @friendyshirley you'll find more information about neuropathy and stem cells in this discussion on Connect:

- Stem Cell Therapy for Neuropathy https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

The short answer: Unfortunately, because of the complexity of the brain and spinal cord, little spontaneous regeneration, repair or healing occurs. Therefore, brain damage, paralysis from spinal cord injury and peripheral nerve damage are often permanent and incapacitating. It is very early days and research in neuroregeneration is ongoing. Beware of charlatans.

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kruppm | @kruppm | Jul 5, 2018
In reply to @sdemaria "GM, yes I've heard about stem cell therapy. However, I never research myself . I would..." + (show)
@sdemaria

GM, yes I've heard about stem cell therapy. However, I never research myself . I would try it for sure.

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it is not covered by insurance....125,000....didn't work

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kruppm | @kruppm | Jul 5, 2018
In reply to @swiss "have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular..." + (show)
@swiss

have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular in Texas who are authorized to harvest your own fat cells after liposuction and get your own stem cells out of it the same day - these will then be applied IV or IT injection and may repair nerves and other tissues as well as it may reverse the demylielisation into remylielisationialisation damaged peripheral or central nerves, this may be the future of medicine as such as these injected stem cells can change into any type of needed cells.

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ivig every 14 days

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kruppm | @kruppm | Jul 5, 2018
In reply to @swiss "have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular..." + (show)
@swiss

have you or anyone heard of Stem Cell Therapy? Apparently there are US doctors, in patricular in Texas who are authorized to harvest your own fat cells after liposuction and get your own stem cells out of it the same day - these will then be applied IV or IT injection and may repair nerves and other tissues as well as it may reverse the demylielisation into remylielisationialisation damaged peripheral or central nerves, this may be the future of medicine as such as these injected stem cells can change into any type of needed cells.

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chicago is best...expensive

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swiss | @swiss | Jul 6, 2018
In reply to @johnbishop "If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next..." + (show)
@johnbishop

If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next meeting should be an interesting one. I'm hoping to attend.

Next Meeting:  Saturday, August 4th at 10 AM
Speaker: William Hoffman of the U of M Medical School
Topic: Stem Cells and Regenerative Medicine: A Revolution Picks Up the Pace

He will discuss what stem cells are and the diseases that cell therapies and regenerative medicine can treat emphasizing their potential for treating neurological disorders. He will review pluripotent (capable of differentiating into one of many cell types) and adult tissue stem cells currently in cell therapy clinical trials. Finally, he will talk about the growing marketplace of direct-to-consumer non-FDA-approved stem cell therapies in the U.S.

Meeting location: 
St. Michael's Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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Sounds great, I will be glad to receive your report after this August 4th meeting, thanks for your assistance!

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Mentor
John, Volunteer Mentor | @johnbishop | Jul 6, 2018
In reply to @johnbishop "If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next..." + (show)
@johnbishop

If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next meeting should be an interesting one. I'm hoping to attend.

Next Meeting:  Saturday, August 4th at 10 AM
Speaker: William Hoffman of the U of M Medical School
Topic: Stem Cells and Regenerative Medicine: A Revolution Picks Up the Pace

He will discuss what stem cells are and the diseases that cell therapies and regenerative medicine can treat emphasizing their potential for treating neurological disorders. He will review pluripotent (capable of differentiating into one of many cell types) and adult tissue stem cells currently in cell therapy clinical trials. Finally, he will talk about the growing marketplace of direct-to-consumer non-FDA-approved stem cell therapies in the U.S.

Meeting location: 
St. Michael's Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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@hopeful33250 there hasn't been any videos of the meetings since I have belonged but if any are available I will post them on the website. John

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 6, 2018
In reply to @johnbishop "If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next..." + (show)
@johnbishop

If you live in the Minneapolis - St. Paul area, the Minnesota Neuropathy Association's (http://neuropathy-mn.org/) next meeting should be an interesting one. I'm hoping to attend.

Next Meeting:  Saturday, August 4th at 10 AM
Speaker: William Hoffman of the U of M Medical School
Topic: Stem Cells and Regenerative Medicine: A Revolution Picks Up the Pace

He will discuss what stem cells are and the diseases that cell therapies and regenerative medicine can treat emphasizing their potential for treating neurological disorders. He will review pluripotent (capable of differentiating into one of many cell types) and adult tissue stem cells currently in cell therapy clinical trials. Finally, he will talk about the growing marketplace of direct-to-consumer non-FDA-approved stem cell therapies in the U.S.

Meeting location: 
St. Michael's Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437

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@johnbishop Thanks
Teresa

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axel | @axel | Jul 6, 2018
In reply to @suzylulu "Coleen and John, you are appreciated for your efforts in guiding and answering our questions." + (show)
@suzylulu

Coleen and John, you are appreciated for your efforts in guiding and answering our questions.

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Jk1234 experience with neuropathy post intervention for sciatica is a possibility. I had back surgery for sciatica about 6 years ago. I only recently developed neuropathy and the neurologist was of the opinion that it is the result of type 2 diabetes and recommended to see an endocrinologist . My internist recommended metformin to treat both problems. I am opposed to more pharma, because the pain is tolerable except early morning getting out of bed or after long walks. I do low impact exercises in the pool which does not cause any pain. At 80 years of age things are breaking down and I don't give it another thought.

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wanda78wren | @wanda78wren | Jul 10, 2018

At this point only symptoms in feet. Was kept awake last night by itching from thumb and up arm but have no sign of redness or rash. Does neurophy ever present with itching instead of tingling?

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