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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Posted by Ethan McConkey, Moderator @ethanmcconkey, Dec 18, 2019

Welcome to the Polymyalgia Rheumatica (PMR) group on Mayo Clinic Connect.

Meet other members who are dealing with PMR. Let’s learn from each other and share stories about living well with PMR, coping with the challenges and offering tips.We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Grab a cup of coffee or beverage of choice and let’s chat. Why not start by introducing yourself? What's your experience with PMR? How are you doing today?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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cheraloha | @cheraloha | 1 day ago
In reply to @queenshort "I’m not sure if I am typical or not. I took a very hard fall, I’m..." + (show)
Profile picture for queenshort @queenshort

I’m not sure if I am typical or not. I took a very hard fall, I’m kind of a “just get up and keep going” person. I slammed the whole right side of my body onto concrete floor. About a week later I had difficulty lifting a cup with my right arm.. right shoulder and ribs very painful.. thinking”I broke something”
A few days later woke with terrible flu like symptoms “but not quite exact” . I could not get myself upright from bed, could not get up from chair, get in and out of bathtub, get dressed. Curiously the severe pain was only right ribs , arm and shoulder and only then moved into my left shoulder. Otherwise just severe general malaise and low grade fever. I am very active 71 and was returning from a 5 mile hilly hike when I fell.
7 trips to Dr, and numerous blood tests and xrays over a month to get diagnosis.. CRP and sed rate thru roof. 1 dose of prednisone and all better… apparently this is defining. That was several months ago and weaning prednisone now, on 3mg.
My onset was very quick and very hard. My Dr thinks I may not relapse. I hope not. I love gardening and hiking and I live alone.

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Hi, I took a hard fall while hiking and the next day, felt weak all over. Ultimately, I was diagnosed with PMR. That was over a year ago. Down to 4 mgs of Pred and on Kevzara. You're doing well if you are already down to 3 mgs. In any event, my onset was quick and the result of a hard fall@queenshort

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bbrass | @bbrass | 20 hours ago
In reply to @queenshort "I’m not sure if I am typical or not. I took a very hard fall, I’m..." + (show)
Profile picture for queenshort @queenshort

I’m not sure if I am typical or not. I took a very hard fall, I’m kind of a “just get up and keep going” person. I slammed the whole right side of my body onto concrete floor. About a week later I had difficulty lifting a cup with my right arm.. right shoulder and ribs very painful.. thinking”I broke something”
A few days later woke with terrible flu like symptoms “but not quite exact” . I could not get myself upright from bed, could not get up from chair, get in and out of bathtub, get dressed. Curiously the severe pain was only right ribs , arm and shoulder and only then moved into my left shoulder. Otherwise just severe general malaise and low grade fever. I am very active 71 and was returning from a 5 mile hilly hike when I fell.
7 trips to Dr, and numerous blood tests and xrays over a month to get diagnosis.. CRP and sed rate thru roof. 1 dose of prednisone and all better… apparently this is defining. That was several months ago and weaning prednisone now, on 3mg.
My onset was very quick and very hard. My Dr thinks I may not relapse. I hope not. I love gardening and hiking and I live alone.

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@queenshort what was your prednisone dosage to start and how long did it take you to wean to 3mg? Also, did you experience any of the pain/ache symptoms while weaning?

REPLY
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queenshort | @queenshort | 16 hours ago

Hello. I started at 60mg, weaning by 20 mg, down every three days to 20 mg which I stayed on for about a week then weaned by 5 mg every three days until I reached 5 mg which I stayed on for two months. A recheck of my inflammatory markers showed them back in the normal range. Now I am weaning by 1 mg a month. I can’t say that I have had any significant symptoms return during this process.
My symptoms abated with in the first couple days of starting prednisone; I have been told that it is diagnostically definitive for PMR if your symptoms abate quickly with prednisone.

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