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Polymyalgia Rheumatica (PMR) | Last Active: Jun 8 11:23pm | Replies (2096)Comment receiving replies
Replies to "@queenshort Ohhh, quick and successful taper gives me dreams and hope. Thank you for sharing;-)"
It’s not quick but after relapses with even very careful tapering when I got under 10 mg, I am having great luck with a slow taper schedule I read about on this site. It goes like this: (H stands for higher dose, L stands for lower dose. The lower dose I’m using is always .5 mg lower than the higher dose was). The schedule is:
H H L H H L
H L H L H L
H L L H L L
L L L L L L
Then start again with the low dose as the new high dose. So it’s 6 days at each level of the taper. If I feel a little pain creeping back in I just stay put at that level for a few more days and so far it has always resolved.
Hope that makes sense. It has really worked for me, after 2 years of frustrating up and down med adjustments due to flares as my dose started coming down.
I’m down to 2 mg now and if all goes well will be off completely this summer.
Will always be grateful to the person who posted this schedule. My doc has been very supportive because what we were doing clearly wasn’t working well for me.
Best of luck - hang in there!
Connect

@pmrnew
https://connect.mayoclinic.org/comment/1564657/
Read this post from someone else on the Mayo site. Info from Canada. Explains the process of tapering so well.