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Polymyalgia Rheumatica (PMR) | Last Active: Jun 8 11:23pm | Replies (2096)Comment receiving replies
Replies to "It’s not quick but after relapses with even very careful tapering when I got under 10..."
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@cyndip Thanks for this plan. I think I will try it. I have been using the "dead slow nearly stop" plan and it has worked but takes me 5-6 weeks to drop .5 mg, which is all I'm comfortable dropping at once due to experience with flare-ups. I may finally be able to speed it up. That's great that you are at 2 mg!. I'm at 6 mg after almost 5 years on prednisone. I have tried all the other drugs (methotrexate, Kevzara, Actemra), still on Actemra infusions. My conclusion is that the taper can't be pushed. When my body is ready to let go of these diseases (PMR, GCA) I will be able to get off the drugs.