HOCM w/SAM

Hi. I was just diagnosed with HOCM with SAM and even though I could read things about this diagnosis on the web or information from my doctor, I'm really looking for others who are now considering surgery or were post-surgery (including the ablation procedure).

I'm kinda shocked because I've been with a top cardiologist in my area for over 8 years and had numerous tests including many echocardiograms and he never ever saw or told me that I have this condition. Even though I had the signs and symptoms for years which are disabling, he only said I'm stresses myself out, I ask too many questions, doesn't know why I have SOB, even when my heart rate is 35 he says I'm fine, basically gas-lighting me.

I finally changed cardiologist and he did one echocardiogram and I have severe HOCM.... No wonder why I'm feeling horrible every day, year after year.

Does anybody have/had similar issues trying to get diagnosed? I've had left and right angiograms and TEE and now waiting for a cardiac MRI to figure out if I'll have open heart surgery or the ablation procedure.

Any comments or stories would be appreciated. Thanks!