Looking for what to expect as I consider Kidney Transplant

Well having this site is an outlet right now. My kids are in denial. They just do not believe anything is wrong with me. I have RA and I was told many organs can be harmed. I lost a baby when she was 3 months old. If I can get through that, I can do anything. Thank you. You all have so much more than I to deal with. Right now my job is prayer for all of you and me.

Hi @oregongirl i can't say i know what its like to have bad kidneys and maybe need dialysis as i needed a heart transplant but I just wanted to let you know rhat i to understand how you are feeling as both my son and daughter and other family members other then my mom were in denial about me needing a new heart to this day my son is still unable to talk about it and my baby brother and his wife still tell me its all in my head your kids will eventually come around out of denial my advice is stay stronge and have faith and always never give up hope work is good and keeps you busy I can't work my team won't clear me and all I know how to be is a caregiver I just thought you might like to hear from someone who has gone thrue with their lids what you are going thru I know its not easy but I believe and have faith and prayer that you are going to be okay no matter what is your decision is trust yourself and your doctors have hope and faith soory if I'm tepeating myself can never write what I'm thinking exactly right on paper or this phone

@teabird..you said it just right. I went next door to my daughter in law and my son's home and my DIL asked me whats wrong? I don't know what expression I had on my face or what made her ask the question. I answered, just feeling a little weak tonight. FROM WHAT? she said. I understand. I cared for my husband until he passed away. I remember wanting to say.. GET UP, you can't well just lying there. And then he was gone. So, I don't hold it against them. This is how they survive loosing a parent. After-all, when they loose a parent, they realize their own lives are not forever. I really can't say much right now as I will see the doctor and have more information. A heart transplant sounds a lot more frightening than the kidneys. However, both are needed for this body to work. My issues is getting tired so easily. I feel like I could sleep all the time. I grew up in Minnesota, so I am familiar with Mayo. My mother went there and I was always with her. Here it is New Years Eve and at 9:00, I am ready to fall asleep. I will force myself to look into Youtube on my laptop just to stay awake. Thank you Teabird. You are the BEST!

Please call me glinda and your welcome

Do not fight your body, it knows what is best. If it needs sleep there is a reason. Check with your doctor as soon as you can to find out what is happening. May your New Year be enjoyable and fruitful.mlmcg

Rosemary..they have done so many tests on me. No one ever tell me the results. Last visit the cancer Dr said it takes awhile to get tests back. I figure he is gone for Christmas. I am tired of waiting. I am calling his office tomorrow.

@sevkira My husband had a living donor (our brother-in law - unrelated). The transplant was coordinated at just the right time, and my husband never went on dialysis before transplant. It depends on your particular situation.

@oregongirl, Yes, I know the misery of waiting.
You are among many 'champion waiters' when you post in the transplant community! Definitely not alone in your impatience. I have learned to always ask, at the time of the testing, when and how I will learn the results. I have also learned that each facility and practitioner has a preferred method. And, it is correct that some tests do take longer to process than others. Most important is that if several tests are given, that time might be needed to compare the results for an accurate diagnosis.
I agree that you should make a phone call.
I'm thinking about you. Keep in touch.
Hugs,
Rosemary

Sevkria, How old was your husband at the time of the Transplant? I really do not wish to wait three more weeks to get my analysis from the doctor. I think he is on Christmas Break. There must be someone in his office to answer my questions. I am calling today. I have ever done this. All of my specialist at the University.

I will keep in touch The doctor did say that one test or two had to be sent out and it takes about three weeks. I saw him about two weeks ago. That enough time. I will let you know how it goes. Since I grew up in Minnesota, I would be open to meeting with a doctor at Mayo, Are all the Mayo's the same? I live in Texas, and I know there is one in Arizona.