Switching from Tacrolimus to Cyclosporine post kidney transplant

Thank you! Does anyone have any tips to help with the stomach burning/pain? I used to use saltines but due to my mouth sores, that's a no go. 🙂

Hi @benedict66066
Did one of the immune suppression medications give you mouth sores?

It's likely one of them is at least contributing to the mouth sores but I am being treated for a viral infection. Hard to know for certain when in the post transplant period there are so many medications that might contribute.

@benedict66066 to avoid stomach pains, do you take your meds with food? Did the docs prescribe something like Pepcid or Protonix for you to try for the stomach pains? Are you on Mycophenolate or Myfortic?

@stephanierp
Hi Stephanie! May I ask what was happening they switched frim TAC to Cyclosporine? Was it mainly fatigue that you were experiencing or something else? How often do you test the blood level of Cyclosporine? Thanks!

@hello1234 I take my meds with a snack but not a full meal, as I don’t want to skew my cyclosporine levels but rather keep them steady. I already take pantoprozole so I don’t know if I could add in Pepcid? I take Myfortic and just this morning Mayo lowered the dose so I’m hopeful, my stomach symptoms will ease. Thanks much

@hello1234 Hi,
The main thing for me was pancreatic involvement - high blood sugar and pancreatitis. And I don’t remember how often they checked it the first year. They check more often at first and then ease off.