Looking for what to expect as I consider Kidney Transplant
Hi, I was wondering if anyone can give me more info on what to ask the transplant team when I go for my evaluation. I'm struggling with whether dialysis is better or a transplant. I know any surgey has risks.
Interested in more discussions like this? Go to the Transplants Support Group.
@mlmcg, Thanks, I absolutely love these ideas! Rosemary
While this discussing has opened to the subject of eating and weight gain. Kristin, @keggebraaten, who is one of the transplant moderators on Connect, posted a new Transplant Blog. The blog posts are by the transplant staff. And today she posted one about weight gain after transplant! Is that great timing???
Here is the link if you want to check it out.
https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/
I think the ice cream part could be about me! Ice cream is my down fall - I jokingly call it my 'beverage' of choice since my transplant. And, "Yes" moderation is the necessity!
Rosemary
@rosemary - I found this very helpful and did think her timing was impeccable!
I have policystic kidney disease and have been on PD for over 5 years. I am stuck at the dental clearance part since insurance doesn't cover it. Waiting to have operation at UMC Las Vegas.
@aljoey, I want to welcome you to Mayo Clinic Connect. We are happy that you have joined into our kidney transplant discussion. Here on Connect, we support and encourage each other by sharing from our experiences. We also help each other by asking and answering questions, and to locate accurate medical information.
I am a liver/kidney recipient. Due to acute kidney failure, I had a short 9 weeks of dialysis, and I don't know much about polycystic kidney disease (PKD). However, I can help you to find information if you need any. And to answer questions, or to keep you company as you endure the waiting time.
So, is the dental clearance the only thing holding you back right now?
What would you like to know or how can we be of help to you?
Rosemary
I pray that you get your operation soon.
@aljoey, I've been thinking about you. I hope that you are progressing toward your transplant. And that you are feeling well.
I hope that 2018 will be a year of good health for you.
Rosemary
@sevkira, I want to let you know that I am thinking about you. I hope that you are feeling okay and making progress with your treatment.
I hope that 2018 will be a good year for you.
Rosemary
There is a home hemo-dialysis option, if you have a willing and able caregiver. It is a team effort. My husband lost his transplanted kidney to immunotherapy earlier this year. We have been doing home hemo since March. http://www.nxstage.com/hcp/care-settings/home/
@oregongirl, I invite you to read thru this discussion where many of our members have shared some experience with dialysis. @oregongirl, after reading the posts in this discussion, what questions would you like to ask.
I also want to mention the following members who have participated in this discussion in the past who might be available to talk to you.
@sevkira, @peterm53, @ca426, @lcamino, @aljoey, @dshaver, @mlmcg, @fauneconner, @coastalgal, @mattgnyc
Rosemary