1. < Neuroendocrine Tumors (NETs)
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I have a neuroendocrine tumour in the small bowel and liver lesions

Posted by zalda @zalda, Feb 25, 2024

I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.

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fraaseo | @fraaseo | 1 day ago
In reply to @dbjoyce "@fraaseo Thank you for sharing. My second surgery was also cytoreduction with removal of 92 cm..." + (show)
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@fraaseo Thank you for sharing. My second surgery was also cytoreduction with removal of 92 cm ileum and right colon, omentectomy, liver ablation and stripping of peritoneum. It lasted 8 hrs. I am only 9 mos post surgery and doing quite well outside of occasional elimination issues. I know if I had open procedure 5 years ago I would have been better. Anyway, question....how long before your digestion improved, did you have to take bile acid sequestrants? Lastly, I start Lanreotide next week...did you have side effects from that?

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@dbjoyce I still have some diarrhea but manage it with a prescription of Lomotil. Much more manageable for once a day instead of multiple bathroom trips. I’ve found by eating at least 2 servings of protein each day has helped tremendously!
The only side effect I noticed from the shot was fatigue for a couple days afterwards. I did have a lot of gas at first & used Gas X for relief; not sure if that was from me still healing from surgery or the shot. Today I have no side effects, rarely have fatigue. I’ll probably never have my before cancer energy level but I do feel good & enjoy many activities. Close to being my old self😊 I wish you the best!

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