I have a neuroendocrine tumour in the small bowel and liver lesions

Posted by zalda @zalda, Feb 25, 2024

I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for Turkey, Volunteer Mentor @tomrennie

@dbjoyce That has to be comforting. The first part of any treatment is scary. So the shots are your game plan moving forward?

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@tomrennie Yes, after the second surgery, scans are good and serotonin levels dropped this year before the injections even started from 1200 to 290. Of course, I continue to be part of NIH study which gives me the advantage of their better scanning technology. And I follow with my local Net oncologist.

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