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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @seesspotz and welcome to Mayo Connect. You inquired if there were any transplant recipients in this group. I would like to invite @kim1965 to post with you. His wife had a liver transplant after treatment for NETs, and perhaps he can share her experiences with you.
Have any other treatments been offered, such as PRRT?

Getting a second opinion, prior to a transplant, is an important next step. I would encourage you to get this appointment with a NET specialist. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

How are you feeling now? Do you have a lot of digestive problems? How is your energy level?

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Replies to "Hello @seesspotz and welcome to Mayo Connect. You inquired if there were any transplant recipients in..."

@seesportjump Welcome to this group. What specific questions do you have that we can try to help with? We are hopeful we can give some advice.