Brinsupri experience after 3+ months

Thank you. That is an interesting observation Some of my dreams are about a volunteer project I am coordinating and most likely are related to my worry about the outcome. Thus I wake up and cannot get back to sleep.

@11565lady Yes, wake up and can't get back to sleep, I know about that one.
I am not on Brinsupri but that happens a time or two each week however I find that taking certain supplements seem to help. I believe that a calcium/magnesium, or melatonin, Vit. D help with sleep. I don't know if those supplements would be a problem while on Brinsupri????

It appears t for me it helps. I find I can sleep better and get back to sleep in taking them.
Barbaraa

@blm1007blm1007 thank you. I am suspecting it may be vitamin related rather than Brinsupri.

I've been on Brinsupri for about 5 months. The 1st month I didn't feel that it was helping. I was coughing a lot and brought up a lot of phlegm. I felt tired and discouraged. The next month the coughing was less as was the expectoration.
Month 3 & 4 was a great improvement. Coughing significantly less as was expectoratiing. I felt great.
(FYI I use a nebulizer with 2 medications....not regularly but often.)
Now I've finished my 5th month. My coughing has increased tremendously causing me to bring up phlegm very often....especially in the morning. I am once again very worried that Brinsupri has stopped working.
I would like feedback from medical experts.
Thank u

I've was on Brinsupri for 2 months and was feeling good, less coughing & mucus. Two weeks ago, I started coughing more with fatigue, almost like pre-Brinsupri. I sent a sputum sample To NJH and tested positive for a low load of Haemophilus Influenzae. I think the Brinsupri is still helping, but my doctor prescribed Augmentin to deal with the bacteria..

@hop4joy Hello, I'm sorry you are not doing well right now. Mayo Connect is a patient and caregiver support network who share our journeys, successes and questions, but we are not medical professionals.

Brinsupri is new to all of us, and the long-term effectiveness is not yet known. Please share your concerns with your doctor, they may want to check you for a secondary infection.

@jago
I think you were very wise to send in a sputum to check for an infection with your increase in symptoms. Hope you are feeling better. I've been on Brinsupri for 6 months now. I've found it takes time for this medication to fully "kick in" . I had ups and downs with it and wondered at times if it had stopped working also, but continued with taking it and the grinding routine of airway clearance. Now, I am thankful I did and did not stop taking it. The difference in my lungs is remarkable. Hang in there.

@cwal Thank You! I'm so glad it's helping you. I think we become fine-tuned to the ever changing daily symptoms, and in my case it felt like it wasn't a Brinsupri fail or allergies. Mentally (and physically) I feel better having an answer to the increased mucus. I'll hit the 3 month mark soon and look forward to better days.