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Profile picture for SusanEllen66 Susan McMichael

Support Group for Those of Us Living With Mild Dementia

Posted by SusanEllen66 Susan McMichael @SusanEllen66, Sep 18, 2023

I know there is a Dementia Caregiver Support Group.

I would like to have a group for people like me. I am entering the Mild Dementia phase from Mild Cognitive Impairment.
It’s frightening to think about my future.

Could a group for Dementia Patients be started?

Interested in more discussions like this? Go to the Aging Well Support Group.

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carmine100 | @carmine100 | 22 hours ago

We all should remember that we are not the person we were fifty years ago. Time takes its toll on our bodies and minds. Realize this and adjust your life.

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hraka13 | @hraka13 | 20 hours ago
In reply to @craigbyrom "Well, I’ve been diagnosed with MCI; as I’ve spoke about here and have been sharing my..." + (show)
Profile picture for craigbyrom @craigbyrom

Well,
I’ve been diagnosed with MCI; as I’ve spoke about here and have been sharing my experiences and symptoms.
I have been sharing these same experiences/ symptoms with all my doctors.
Had neurology appointment today and he broke the news that everything is pointing towards Lewy Body Dementia and is starting me on Donepezil or Don Perrone.😁
Sorry I had to throw a joke in there as it’s my way of coping.
I have been thinking that this is what I was going to hear from him based on my research, but it’s a lot heavier when he says it.
I hope the Donepezil will help.
I look forward to my visit in June and all the additional and new testing. Need to make sure they plan on skin biopsy for me.
I am blessed to have loving children, my son is my champion with all of this.
Thanks for reading.

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@craigbyrom, if we can’t laugh, what’s the point. I know I’m batsh*t crazy but when I take my meds as prescribed other people aren’t jerks.

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baunch | @baunch | 10 hours ago

It would be most welcoming!

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sharonlynne | @sharonlynne | 10 hours ago
In reply to @fletchette "Hi Susan, thanks for your note. I do have vascular dementia as confirmed by CT scans..." + (show)
Profile picture for Pattee Fletcher @fletchette

Hi Susan, thanks for your note. I do have vascular dementia as confirmed by CT scans last autumn. I was diagnosed with MCI about 3 years ago based on written and oral tests. But now I show my red blood vessels are shrinking and my memory is a bit worse. I also have some minor gait issues. I’ve been prescribed 2 drugs, memantine and Rivastigmine (a patch I change daily). And I have put myself on the Mind Diet (easy to find on the internet). A big change in my eating habits but I hope, worthwhile.
I’m 77 years old, married with 2 daughters and 4 grandchildren. I live in Columbia. I garden. I read, but don’t remember much day to day - a huge pain! We love to travel and so far, that’s OK.
I’m you want to chat privately, text me at 14107074398.
It’s not a death sentence, yet☺️

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@fletchette

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sharonlynne | @sharonlynne | 10 hours ago

I, too, identify with what you are experiencing and am scheduled for an MRI of my brain this Thursday. Did you get your results immediately?

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Pattee Fletcher | @fletchette | 8 hours ago
In reply to @sharonlynne "I, too, identify with what you are experiencing and am scheduled for an MRI of my..." + (show)
Profile picture for sharonlynne @sharonlynne

I, too, identify with what you are experiencing and am scheduled for an MRI of my brain this Thursday. Did you get your results immediately?

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@sharonlynne I did. My radiology center has a patient portal and the results go in quickly. But I don’t always understand what specific results mean. So I need my neurologist to explain. I had a CT SCAN for the overall condition and a PT scan for Alzheimer’s. I have vascular dementia and not Alzheimer’s dementia.
Wishing you well.

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