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Alzheimers care and treatments: Consult with Mayo Clinic?

Posted by japlok @japlok, May 12, 2025

My wife was just diagnosed with AD and is currently on Donepezil. She will be taking a MMSE test in a couple of weeks to see if she qualifies for Leqembi or Kisunla. Does anyone recommend trying to get a consultation with a doctor at the Mayo in MN or stick with my current doctor? I'm looking for the best 'team' to help my wife and don't want to miss any opportunity if one is there. I have done nothing but read about the disease and tried to find any information on advancements to cure AD or slow it down significantly but haven't found anything that is promising. I read about using ultrasound to allow for the medication to attack the plaque quicker and also something called Perispinal Etanercept where an FDA approved drug for arthritis is used for AD treatment. I just need help with our path forward.

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upgirl2013 | @upgirl2013 | 10 hours ago
In reply to @lulululu "@upgirl2013 I admire you taking the steps to get a diagnosis. How old is your husband?..." + (show)
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@upgirl2013 I admire you taking the steps to get a diagnosis. How old is your husband? My husband was also diagnosed in middle stage and takes the same meds. He does not like that he no longer can drive. I can still leave for a couple of hours to go to gym or walking. I don't worry about him wondering as he has severe neuropathy and uses a walker or wheelchair. I hope I am able to care for him until the end. He is 82 and I am 79 but I am in great health. This an unfortunate disease. I would like to hear what things he accepts to keep his brain active.
Have a great day.

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@lulululu My husband is 74 and I am 65. At this point, I can leave my husband home alone for a few hours. He can reheat food in the microwave and is independent in his daily needs. I am enjoying this new phase as he is taking showers without being told to do so. During the last phase of this disease, my husband slept a lot and was pretty depressed. He does not realize that his friends have stepped back and seems to be okay is hanging with me.
We go to the Y together and he walks on the treadmill while I use the spin bikes. The doctors told my husband to sweat everyday for 30 minutes and we are working up to 3 times a week. He is learning patience while I do a 20 min. strength training video.
The social worker suggested he tell me what he watched on TV, I do not want to hear the negative news all day. We are trying to figure that out. My husband quit reading the news on his computer a long time ago. He will tell me what his phone says, but does not know if it was a text, email or newsfeed.🤷🏻‍♀️
I told our children that I would keep him home until he gets violent and/or does not recognize me.
It is easy to care for him now, and know there are a lot of tough days ahead.
Keep taking care of yourself and enjoy the time you have with your husband.

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