Anyone have Squamous cell cancer and where?

@grammato3
Thanks for asking.
First infusion of Inloxcyt was on April 8.
Today is Saturday, April 18 and I believe my hair may be falling out.
I am the first patient of my Oncologist to use this Immunotherapy, I don't know what to expect since it so new.
Will keep u posted.
Next infusion on May 4.
Again thanks for asking!

@ptrjohng thanks for support 😊

@cappy51 Please let me add my welcome, as @grammato3 has done. We all can understand the uncertainty getting news like this can instill in us. OHSU is a great place to go to. I live in southern Oregon, and go to Eugene for my specialists, plus know there is OHSU not much further up the road if need be.

Please, as Susan mentioned, let us know how we can be of service, any questions we can help with, any support we can offer?
Ginger

@ptrjohng thanks

I just had Basel cell/squamous cell surgery on my chest. There were more Basel cell vrs squamous cells so they dictate it Basel cell. I had a hard time with the external stitches, angry and red. And I spit out a lower dissolveable stitch. Pathology showed they got it all. Except I ended up with two types of staphylococcus infections.
It’s been a little more than I expected. It’s been a month. Im still dealing with this infection.
I’m sure it will eventually heal.
I wish I had a better response for you. But we do heal.

@gingerw
Thank you for the sincere answer. It is appreciated. We don’t know the answer, but we are hoping OHSU is going to help with our minds at ease.
I did learn that there is such a thing as tongue reconstruction, taking from a muscle group in your body. My husband is a great musician and toured many years as a duo, singing and playing very states he now writes music, even though he no longer sings, We don’t want him to lose his voice totally. Again, thank you for the reply.

Yes, we are new members, And thank you so much for responding to My post
We don’t know yet what OHSU will offer us, but we are seeing the lead professor at that facility, and that is hopeful. I did find out that there was such a thing as tongue, reconstruction, so hope to put my husband at ease that he will not entirely lose his Tongue, Swallowing and speaking ability.
He Is an accomplished musician, singer, songwriter, but he no longer can sing, but Continues to produce magnificent music, jazz, smooth, jazz, contemporary, and now country.
I am happy to share what we learn at OHSU, and feel confident going there as it is A respectable learning hospital and very well-known
I myself, Had a surgery done there when my surgeons in Eugene didn’t want to perform the delicate surgery. My doctor Found an incidental aneurysm in the middle cerebral portion of my brain about 15 years ago. They immediately sent me To OHSU, and I got one of the top neurosurgeons to do my surgery and clip the aneurysm. There has been no repercussions or losses from the surgery and I am internally grateful. God is good!
we continue to pray.

@cappy51: What a wonderful career your husband has been involved in! I had a colleague who had a large portion of her tongue removed due to cancer but reconstruction had not been offered to her. That sounds like a remarkable option.

Speech & Language Pathology (SLP) will likely be intricately involved in the rehab process to help with such things as swallowing and speech for post-treatment interventions. It may take several months and perseverance but with your histories and outlook you both have the mindset to surrmount this.

When do you meet with the lead professor? If you can, please provide an update after that meeting.

@1lalataylor Sorry to hear you're going through this. Staph is common to have on the skin and can happen even after the area is cleansed prior to treatment and/or if there is compromised skin integrity or immunnity or afterwards from the skin around the incision. However, the incidence of this occuring is usually low - but when it does occur it can progres and/or become more challenging to treat so early detection and reporting is important. Did you have signs of reddness/warmth or swelling around the incision, pain, swelling or fever? What improvement have you noticed to date?