1. < Polymyalgia Rheumatica (PMR)
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Kevzara Side Effects?

Posted by hopeinal @hopeinal, Jun 18, 2024

I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The skin on my forearms and tops of my hands is paper thin and I'm covered in horrible blackish deep purple blotches, skin tears and bruises constantly. My hair is falling out. My eyes look like I have pinkeye. Plus I'm weak as a kitten.

So I'm wondering what sort of side effects those of you on Kevzara are having, if any?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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prettypatti76 | @prettypatti76 | Mar 26 2:25pm

Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly. So I am wondering if Kevzara is better.

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tweetypie13 | @tweetypie13 | Mar 26 6:11pm
In reply to @prettypatti76 "Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly...." + (show)
Profile picture for prettypatti76 @prettypatti76

Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly. So I am wondering if Kevzara is better.

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None of those side effects,
Did you already have osteopenia in the neck and bck nd this just raised it?

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1 reply
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prettypatti76 | @prettypatti76 | Mar 26 6:52pm
In reply to @tweetypie13 "None of those side effects, Did you already have osteopenia in the neck and bck nd..." + (show)
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None of those side effects,
Did you already have osteopenia in the neck and bck nd this just raised it?

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@tweetypie13 Hi. I had some osteopenia. But I take all the necessary supplements for bone health and still got osteoporosis.

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tweetypie13 | @tweetypie13 | Mar 26 7:50pm
In reply to @prettypatti76 "@tweetypie13 Hi. I had some osteopenia. But I take all the necessary supplements for bone health..." + (show)
Profile picture for prettypatti76 @prettypatti76

@tweetypie13 Hi. I had some osteopenia. But I take all the necessary supplements for bone health and still got osteoporosis.

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@prettypatti76 bummer…..there are a lot of new things out there. Hope you find a solution

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stonewheel | @stonewheel | Mar 27 7:11pm
In reply to @prettypatti76 "Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly...." + (show)
Profile picture for prettypatti76 @prettypatti76

Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly. So I am wondering if Kevzara is better.

Jump to this post

I’ve read that Prednisone can cause “buffalo neck” I think that’s what it’s called.
I’m all the time straightening up when I’m walking. I keep reminding myself.
Is that what you are referring to?

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2 replies
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tweetypie13 | @tweetypie13 | Mar 27 10:02pm
In reply to @stonewheel "I’ve read that Prednisone can cause “buffalo neck” I think that’s what it’s called. I’m all..." + (show)
Profile picture for stonewheel @stonewheel

I’ve read that Prednisone can cause “buffalo neck” I think that’s what it’s called.
I’m all the time straightening up when I’m walking. I keep reminding myself.
Is that what you are referring to?

Jump to this post

@stonewheel my trainer refers to it as
Old lady/man syndrome
Stand up tall sternum up and tall pulls shoulders back and down , longer strides.
It works, takes work. 😎

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1 reply
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Mentor
John, Volunteer Mentor | @johnbishop | Mar 28 3:51pm
In reply to @prettypatti76 "Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly...." + (show)
Profile picture for prettypatti76 @prettypatti76

Prednisone caused osteoporosis in my neck and back. Of course it also created a pregnant-looking belly. So I am wondering if Kevzara is better.

Jump to this post

Hi @prettypatti76, You will notice that we merged your post with another discussion on the same topic so that you can meet other members discussing Kevzara side effects. If you click the link below, it will take you to the beginning of the discussion.
-- Kevzara Side Effects?: https://connect.mayoclinic.org/discussion/kevzara-side-effects/

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prettypatti76 | @prettypatti76 | Mar 28 4:57pm
In reply to @stonewheel "I’ve read that Prednisone can cause “buffalo neck” I think that’s what it’s called. I’m all..." + (show)
Profile picture for stonewheel @stonewheel

I’ve read that Prednisone can cause “buffalo neck” I think that’s what it’s called.
I’m all the time straightening up when I’m walking. I keep reminding myself.
Is that what you are referring to?

Jump to this post

@stonewheel Good afternoon! My DEXA scan and an MRI have unfortunately confirmed osteoporosis. No "buffalo neck" yet. Thank goodness! But, prednisone does cause "moon face." I call prednisone the "Devil Drug," (DD for short), because of all its side effects!

REPLY
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stonewheel | @stonewheel | Mar 28 6:53pm
In reply to @tweetypie13 "@stonewheel my trainer refers to it as Old lady/man syndrome Stand up tall sternum up and..." + (show)
Profile picture for tweetypie13 @tweetypie13

@stonewheel my trainer refers to it as
Old lady/man syndrome
Stand up tall sternum up and tall pulls shoulders back and down , longer strides.
It works, takes work. 😎

Jump to this post

@tweetypie13 that’s me.

REPLY
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circlepfarm | @circlepfarm | Apr 15 3:39pm
In reply to @johnbishop "Hello @hopeinal, I don't have any experience with Kevzara but there are quite a few comments..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hello @hopeinal, I don't have any experience with Kevzara but there are quite a few comments by others on the side effects. Here's a search of Connect with links to comments by others while you wait for members with experience to respond - https://connect.mayoclinic.org/search/comments/.

Here's some information on the side effects if you haven't already seen it:
-- Side Effects of Kevzara: What You Need to Know
https://www.healthline.com/health/drugs/kevzara-side-effects
I'm not on prednisone now but have taken it in the past when my PMR was active. I also have the thin skin that bruises and tears quite easily. Have you discussed the side effects with your doctor?

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@johnbishop
My experience with Kevzara. I took my first shot On Tuesday, March 24, then on Friday evening I wasn’t feeling that well and Saturday morning. I wound up in the ER. They admitted me to the hospital when I spent five days and it seemed my blood work went completely off the charts white blood cells count was off the chart on the bottom along with many others. Now I am not saying that it was the Kevzara, But the literature that comes with it tells you about your immune system being attacked and that seems to be what happened to mine. I got acute bronchitis some other type of bacterial infection in my lung and prior to that I was actually feeling pretty good except for my pain from my PMR, which is a constant. I was released from the hospital with oxygen and mainly at this point I’m only using it at night 1.5 L.

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