Late on-set Multiple Sclerosis

@cheyne did they only take a scan of your brain? Because they need to take a MRI scan of your cervical spine in your thoracic spine because you have lesions up and down that area!!

@teresasangel
Hi,
No just the brain scan. More than enough complications at the moment to worry about. Apparently I'm now into therapeutic failure. Simply I go nuts on medication, violently so and am left untreated. All the while I'm in a state of hyperglycaemia pushing ketosis every day. The only answer I have found is to stop eating, and we all know that is not sustainable. I shudder to thing what MS medication might do to me. Meantime life goes on.
Cheers

@cheyne I'm surprise they only did the brain scan because it's really important for them to do the whole scan of your spine because that can mess up your walking everything it can mess up your stomach everything so I would get your neurologist to really look at everything

Hi,
I can't say I'm surprised that is all they did. I'm due back at neurology this month and have some choice words for them as my life has been turned upside down. I experience temporary paralysis and difficulties mainly from the waist down but not exclusively there only. After around 3 hours from getting up I start to lose the ability to hold myself up and walk. From my point of view there is something wrong around the waist. But as I'm fighting diabetes and the inability to tolerate medication with blood glucose running at 20 mmol/l constantly I'm unlikely to have much use of my legs for very long, just a little sugar short of a coma. Despite being reactive to rapid acting insulin, I now carry it on me whenever I leave the house. Rather be sick from the insulin than dead from the ketosis coma!
Cheers

Hello@cheyne,
I found your post this morning and am wondering if this diagnosis of MS pertains to my condition?
Can anyone please advise if my symptoms are similar ?

I’ve been dealing with pain in my back and neck since 2010. I’ve had 2 lumbar fusions, and a cervical fusion last year, which was successful. But nerve pain continues.

Around 7 weeks ago I began to feel pain in my left side, after a couple days where I was driving or being driven, watching grandkids play soccer.
The nerve pain started slowly the next day, and it’s gradually gotten worse and worse.

Now, I have found through trial and error - when I wake up, stand up in the morning, the pain starts gradually, if I take my time going from lying to sitting to standing the pain is not as bad. But-if not- stand up from lying down, I am moaning groaning and in agony, and have to go back to bed until it stops. If I take My pregabalin and pain meds a little earlier, calm it down, I am able to get up with less pain and get some coffee and start my day.

But even so, I am driven back to bed after a short period of time; I cannot walk without a walker. The recliner is my only choice other than bed.

The nerve pain feels like it’s just firing off crazy, from my waist down the back of my legs and into my feet. The pain moves around, it’s in my left side than it’s on the right side then it’s in the middle of my back. What in the world is going on here?

The surgeon who did my cervical fusion is truly confused. He has ordered some CT scans of my sacrum and pelvic area, that may show something? An MRI of my lumbar area did not discover any problem with my prior fusions. Any advice would be appreciated, thank you!