Late on-set Multiple Sclerosis

@cheyne did they only take a scan of your brain? Because they need to take a MRI scan of your cervical spine in your thoracic spine because you have lesions up and down that area!!

@teresasangel
Hi,
No just the brain scan. More than enough complications at the moment to worry about. Apparently I'm now into therapeutic failure. Simply I go nuts on medication, violently so and am left untreated. All the while I'm in a state of hyperglycaemia pushing ketosis every day. The only answer I have found is to stop eating, and we all know that is not sustainable. I shudder to thing what MS medication might do to me. Meantime life goes on.
Cheers

@cheyne I'm surprise they only did the brain scan because it's really important for them to do the whole scan of your spine because that can mess up your walking everything it can mess up your stomach everything so I would get your neurologist to really look at everything

Hi,
I can't say I'm surprised that is all they did. I'm due back at neurology this month and have some choice words for them as my life has been turned upside down. I experience temporary paralysis and difficulties mainly from the waist down but not exclusively there only. After around 3 hours from getting up I start to lose the ability to hold myself up and walk. From my point of view there is something wrong around the waist. But as I'm fighting diabetes and the inability to tolerate medication with blood glucose running at 20 mmol/l constantly I'm unlikely to have much use of my legs for very long, just a little sugar short of a coma. Despite being reactive to rapid acting insulin, I now carry it on me whenever I leave the house. Rather be sick from the insulin than dead from the ketosis coma!
Cheers