Long Term visits

Posted by nana59 @nana59, Apr 10 6:54am

As a caregiver I moved my Father, who had Cognitive decline/Dementia, into my home. He lived in Colorado & I live in Massachusetts. He has adapted well. I found him neglected and financially abused by family members while he was living in Colorado. So I moved him in with me and received Guardianship. We have a lot of support services in the area for Dementia patients. The issue at hand is the demand from family members to bring him back to his primary home, which is being maintained for him by a family member. I am reluctant to take him back for visits, as his confusion increases with any change in environment or change in schedule. I have tried to keep zoom visits with family members available, but he is hard of hearing and finds them frustrating and then this progresses to sadness and anxiety. I have suggested that these same family members plan a trip out to Massachusetts for a visit, but they feel I should bring him back since I removed him from their area. How do I handle this the best way for my Dad? I truly want him to maintain connection to the family members, (his great grandchildren and persons not involved in the abuse & neglect.) but traveling with him and changing environments I fear with accelerate the confusion and Dementia. I need to do what is best for my Dad but feel I can't protect him from the abusers if I take him back into that environment. I really don't want to isolate him from them, but he has developed so many friends at his day care facility here, and he is flourishing, a side of him I never new existed, i.e., artistic talents due to the activities at the day care facility. I don't feel he is being isolated in his current environment, but the demands and guilt keep popping up. Is this just the fine line a caregiver has to walk? I am new to taking care of a person with Dementia, although not new to caretaking. Any suggestions on how to handle a very difficult situation would be welcomed.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

What you are doing for your Dad is giving him quality of life, circled around people that are caring for him, not abusing and/or using him. Sounds to me, like his moving back is the end of that chapter, and that at some point, the sale of that home, if you are his guardian. As for the other family members, I wouldn't worry about that. The fact that your Dad is developing so many new friends, and you are giving him dignity and that quality of life. With your family members, perhaps, you can give them something from your Dad's doctor, that takes the pressure off you, and shows, the environment he's not in is key for his progression. What your family needs to understand, is that his disease has progressed to the point, they need to progress and know they need to travel out occasionally to see him. They should want to do that and they should be grateful that you took your DAD in, in an area with lots of dementia services, and friends for him. Families are complex, but what I realize with this disease, is that not everyone wants to be on the same page, and that people don't have the ability to adjust their schedules to change - especially with an aging family member, who needs a level of care they really don't have the time to give him. Your family is lucky to have you. stand your ground. Keep him where he is, and continue to work getting your members to at least come visit him even if it's once a year. Best, and hats off to you, for doing what's right for Dad.

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Profile picture for nana59 @nana59

@auntieoakley My father has a cochlear implant in one ear and wears a hearing aid on the other ear. Do you know if the aftershokz device would work for him and where would I find out about it. What company sells it so I could possibly research what it accommodates regarding the extra hearing devices presently used. Could you possibly send me a link to the website so I can investigate it. Thanks.

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@nana59 I am not sure about these with a cochlear implant. They are essentially a bone conduction set that you can connect to your computer. I purchased a set of the 80.00 dollar ones for my aunt to zoom with since she was so hard of hearing.
I found out that I loved them for long meetings because of the clear sound, and the comfort of not having something in my ear.
Here is the website;
https://shokz.com/
You can ask your audiologist or hearing specialist about this too.
Does his hearing connect with blue tooth to the computer?

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PS, there is no such thing as guilt in what you are doing and giving your Dad. Sometimes doing something right can feel so wrong, especially when you have the added pressure of family members with their own agendas. Your daily mantra: Keep doing right by your DAD who needs the quality stepped up care, the social interaction, your love and time. I wish you were my daughter in all of this.......Best,

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Profile picture for kjc48 @kjc48

PS, there is no such thing as guilt in what you are doing and giving your Dad. Sometimes doing something right can feel so wrong, especially when you have the added pressure of family members with their own agendas. Your daily mantra: Keep doing right by your DAD who needs the quality stepped up care, the social interaction, your love and time. I wish you were my daughter in all of this.......Best,

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@kjc48 Thanks for the support. The only saving grace I have is that all the nursing training that I had is not being lost. Still applying all the skills, just on the other end of the spectrum. I was a NICU RN.

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Profile picture for Chris, Volunteer Mentor @auntieoakley

@nana59 I am not sure about these with a cochlear implant. They are essentially a bone conduction set that you can connect to your computer. I purchased a set of the 80.00 dollar ones for my aunt to zoom with since she was so hard of hearing.
I found out that I loved them for long meetings because of the clear sound, and the comfort of not having something in my ear.
Here is the website;
https://shokz.com/
You can ask your audiologist or hearing specialist about this too.
Does his hearing connect with blue tooth to the computer?

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@auntieoakley Thanks, I will do that. First order of business is to know what you don't know...I did not know they even existed. Thanks for the heads up.

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Profile picture for nana59 @nana59

@kjc48 Thanks for the support. The only saving grace I have is that all the nursing training that I had is not being lost. Still applying all the skills, just on the other end of the spectrum. I was a NICU RN.

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@nana59 Its' funny how God seems to put us in positions that later turn up to be value add. I'm not a nurse but four years ago, my neighbor had mild cognitive impairment, somethign I later realized was not in the moderate stage. Her husband up there in years, was in denial. Her adult children in different states were powerless; the father was very controlling. I sat with my friend, took her shopping, while she could still continue to go, got her ready for her son's wedding, made food for her becasue she could no longer cook, read everything I could about Alzheimers, talked to her kids to try to get them involved, worked with her husband finally in the sale of his home, although he was mad as hell at me, for "selling his house" so we could get her back where her kids were with full time care. At that time, I was still active selling real estate. Little did I know all of that with her was my education, in caregiving for my husband when he was diagnosed last year. A precursor for what was to come for me. Who knows. But I'm glad you were a NICU RN; your Dad gets to benefit from your experience and you are knowledgeable and know what to do. Best, Karla

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Profile picture for kjc48 @kjc48

@nana59 Its' funny how God seems to put us in positions that later turn up to be value add. I'm not a nurse but four years ago, my neighbor had mild cognitive impairment, somethign I later realized was not in the moderate stage. Her husband up there in years, was in denial. Her adult children in different states were powerless; the father was very controlling. I sat with my friend, took her shopping, while she could still continue to go, got her ready for her son's wedding, made food for her becasue she could no longer cook, read everything I could about Alzheimers, talked to her kids to try to get them involved, worked with her husband finally in the sale of his home, although he was mad as hell at me, for "selling his house" so we could get her back where her kids were with full time care. At that time, I was still active selling real estate. Little did I know all of that with her was my education, in caregiving for my husband when he was diagnosed last year. A precursor for what was to come for me. Who knows. But I'm glad you were a NICU RN; your Dad gets to benefit from your experience and you are knowledgeable and know what to do. Best, Karla

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@kjc48 Thanks, Karla. Funny how things turn out. I was given the opportunity to come out of retirement, continue nursing, for Free. Best payment though is knowing that my Dad is benefiting from all this experience, not having to pay for it and hopefully be around a lot longer with better personal care. I get a personal benefit also because I get to spend a lot more quality time with him. They don't know what they are missing.

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Profile picture for nana59 @nana59

@kjc48 Thanks, Karla. Funny how things turn out. I was given the opportunity to come out of retirement, continue nursing, for Free. Best payment though is knowing that my Dad is benefiting from all this experience, not having to pay for it and hopefully be around a lot longer with better personal care. I get a personal benefit also because I get to spend a lot more quality time with him. They don't know what they are missing.

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@nana59 Yes, they don't know what they're missing, but Dad has by his side, the good one each and every day! Now, that's a blessing. Best, Karla

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Profile picture for labrown @labrown

It’s sounds like you are looking out for the best interest of your dad and he is doing well in his new environment. The family should appreciate the care you are providing, realize your dad is thriving in his new home, and if they are really wanting to see him they should be more than willing to travel to do so.

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Also it seems that what you think is best for your dad is also best for you
Stay on that path

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You are doing the best thing for him. I would not even think about moving him or traveling with him again. Maybe he could zoom with ear buds or headphones for his hearing loss. Do not feel guilty. You're doing what is best for him. If they love him and are concerned, it is up to them to come to him. I repeat, You did the right thing.

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