Support Group for Those of Us Living With Mild Dementia

@hraka13
I did not know, interesting.

@craigbyrom, it different but has some of the same symptoms.

I was recently diagnosed with
early Alzheimer’s I’m on
Lequembi I’ve had about 8-10 treatments looking for anyone
who is going through this.
My husband could use someone
commiserate with and support

@joycel10
Hello, I just read your text on the Mayo connect website. My husband Robert also has Alzheimer’s(stage 4.5 and has been receiving Lequembi infusions every other week for at least a year and a half .. He is 77 yrs old , a retired Gastroenterologist, and a kind, good, intelligent man . If you would like for us to get our men together for conversational or activity support , we can try to do so . We live in the Mandarin area , frequently see doctors at the Beaches. Call me to work on this together 👍🌈🙏🏻😊.. My husband would probably like a friend whom he could “commiserate with” “ as well… G_d willing it could be of great benefit…

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Well,
I’ve been diagnosed with MCI; as I’ve spoke about here and have been sharing my experiences and symptoms.
I have been sharing these same experiences/ symptoms with all my doctors.
Had neurology appointment today and he broke the news that everything is pointing towards Lewy Body Dementia and is starting me on Donepezil or Don Perrone.😁
Sorry I had to throw a joke in there as it’s my way of coping.
I have been thinking that this is what I was going to hear from him based on my research, but it’s a lot heavier when he says it.
I hope the Donepezil will help.
I look forward to my visit in June and all the additional and new testing. Need to make sure they plan on skin biopsy for me.
I am blessed to have loving children, my son is my champion with all of this.
Thanks for reading.

@craigbyrom
Don’t lose the faith bro!
Many people with Lewy body disease find that the disease dosent manifest into dementia, you can have Lewy bodies for many years and it kinda stabilizes.
I realize that this is heavy duty and can lead to melancholy, very natural. ( go ahead, ask me how I know 🙂).I wear a patch for my cognitive medication, the name escapes me now. The pill form really messed up my stomach.
They will take several skin biopsies from your thigh and ankle and back of your neck.
It may be awhile before results come back, as my hospital doesn’t have the means to process them and they had to be sent elsewhere.
Even if it is unwanted news, people adjust and eventually accept the fact that it is a disease with little hope for change.it took me a few months, but now I am good with it.
I’m on your side, you have all my support and then some.
God be willing. Regards, your friend, Ashley

@ashley43725 thanks for your response, always good to hear your experiences and optimism.
I have multiple appointments in Rochester Mayo at beginning of June.
Son is traveling with and look forward to it.
I feel blessed to have been invited there, I found out just two weeks ago.
Timing couldn’t be better.
You are right, a melancholy has flowed over me since.
I’ll do my best and stay engaged with life and my projects.
Gratitude

@ashley43725
O yes,
How do you know ?

Hello all,
I am so tired of hearing the word "loved one" or the person you "love" has MCI and how to deal with the one you "love." Sad to say, I do not love my husband. There, I said it out loud. Because of his needy, easily offended, demanding and silent treatment when he didn't get his way from the get go, he destroyed the love I had for him during our dating days. The man transformed from a fun loving happy guy overnight, literally overnight! But I had committed to keeping a family together and I was pregnant so I sucked it up all these years (53) for my kids and grandkids. Now, after all his medications, surgeries, mental episodes, his 20 years of blaming me for his unhappiness, I have to hear all this gushy love stuff from people who had good marriages....I'm so exhausted but trying to look at the bright side as well. Because he can't remember, he actually is easier to be around in that way but incredibly needy and dependent on me for his security (!)....So there you go, I think if I had good memories of our relationship I could be more compassionate - I'm so envious of people who actually Love their patient/spouse. That must be so nice.