← Return to Support Group for Those of Us Living With Mild Dementia

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@craigbyrom
Don’t lose the faith bro!
Many people with Lewy body disease find that the disease dosent manifest into dementia, you can have Lewy bodies for many years and it kinda stabilizes.
I realize that this is heavy duty and can lead to melancholy, very natural. ( go ahead, ask me how I know 🙂).I wear a patch for my cognitive medication, the name escapes me now. The pill form really messed up my stomach.
They will take several skin biopsies from your thigh and ankle and back of your neck.
It may be awhile before results come back, as my hospital doesn’t have the means to process them and they had to be sent elsewhere.
Even if it is unwanted news, people adjust and eventually accept the fact that it is a disease with little hope for change.it took me a few months, but now I am good with it.
I’m on your side, you have all my support and then some.
God be willing. Regards, your friend, Ashley

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Replies to "@craigbyrom Don’t lose the faith bro! Many people with Lewy body disease find that the disease..."

@ashley43725 thanks for your response, always good to hear your experiences and optimism.
I have multiple appointments in Rochester Mayo at beginning of June.
Son is traveling with and look forward to it.
I feel blessed to have been invited there, I found out just two weeks ago.
Timing couldn’t be better.
You are right, a melancholy has flowed over me since.
I’ll do my best and stay engaged with life and my projects.
Gratitude

@ashley43725
O yes,
How do you know ?